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Autoimmune diseases, Bone, joint, and muscle disorders, Chronic pain, Digestive disorders, Hormonal and metabolic disorders, Immune disorders, Lung and airway disorders, Neurology (brain and nervous system), Women's health issues, Other


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Posts (2)

Apr 24, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Kelsey, My name I Cindy and Thank You for welcoming to the group. To tell you a little about myself I am a 54 yr old female who has been suffering from Adhesive Arachnoiditis for 17 years now. IN 2010 I had a Arachnoid mass removed from my thecal sac which was missed when they did a MRI on me in 2008.
I orginally am from Northeast Pa where my family doctor helped me with pain medication to keep me somewhat comfortable and also able to live my life. I have since relocated to near Richmond Va and have been without pain meds since November and am having great difficulty finding ANYONE TO DO ANYTHING FOR ME. I cannot continue to live with this pain and do not know where to turn. I completely understand all issues regarding opiod addiction and the present epidemic of overdoses , however; WHAT ARE THE PPL WHO TRULY TAKE THEIR MEDICATION AS DIRECTED AND NEED THIS MEDICATION TO BE ABLE TO GET OUT OF BED EVERDAY SUPPOSED TO DO??? If I do not get some relief soon I will lose my will to go on. Can anyone pls give advice? Thank u again for listening it helps immensely. God bless you all!!

Jan 16, 2018 · Any Adhesive Arachnoiditis members here? in Brain & Nervous System

Hi Jeanne, my name is Cindy and I live in Va. I had a Lumbar Arachnoid Mass removed from inside my thecal sac in 2010. The mass was missed by the Radiologist in 2008. They found it when I had Myelogram in 2010 which showed a complete block. Since then I suffer from Adhesive Arachnoiditis due to my nerves being permantly fused together. I also am having difficulty getting the treatment needed to control the debilitating pain that comes with this terrible disease which has now progressed to severe bladder issues. The opioid addiction/ overdoses issue has definitely affected patients with these debilitating diseases and the ability to be able to get the medicines needed to control our painl. I recently lost my doctor and whom I also consider a friend due to him being arrested by the DEA claiming he was over prescribing pain medications. I can’t speak for the other patients, however; I do know everyone is outraged over his arrest. If it was not for my Doctor I would have been confined to my bed/ couch for the last 7 years and possibly may have ended my life due to the terrible pain that I endured and although I still lived with pain on a daily basis he made it possible to still be able to live my life and not be a prisoner of my home. He had just received his license to prescribe medical Marijuana and we were excited to give it a shot in hopes of eventually being narcotic free. He is a very hardworking, compassionate, and caring man who worked 7 days a week to treat sick ppl including those who had no medical insurance and could not afford treatment only charging them $20 a visit. It is my opinion that we need more doctors like him. I am not denying that Opioid Addiction is rampant in this country however so is debilitating disease and Injurys that require these medications for treatment. If Doctors are allowed to do their jobs and follow the guidelines with proper diagnosis, education of medication use and doing the testing required by law to make sure their patients are taking their medications properly then I believe we will see improvement regarding this very serious issue. My doctor has hearing on Jan 18th pls say a prayer for this amazing man. I pray all charges are dropped and he can get back to doing what he excels at….caring for human beings. If anyone can provide me with any doctors that specialize in Adhesive Arachnoiditis I would greatly appreciate it. Thank you and God bless you all! CINDY MAY