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Feb 6, 2018 · What could this be ? in Women's Health

Hi @countrygirl2, I’m sorry to hear that you are experiencing stabbing pain as I am very familiar with this type of pain. After my full hysterectomy which unfortunately was done in 4 different surgeries, the stabbing pain I experienced was from abdominal adhesions adhering my bladder, colon, etc… to the abdominal wall. I have had two exploratory surgeries since because the pain was unbearable. Adhesions are In my experience, difficult to diagnose and currently no imaging (MRI, CT) can detect them unless there’s a blockage in the bowel that can be seen.
If this is possibly what’s happening with your body, please be your best advocate because NOBODY knows your body better than you do.
I hope this helps!
Sincerely,
Cindy

Jan 21, 2018 · Chronic Abdominal Pain in Digestive Health

Hi Pam,
The problem with adhesions is they always seem to come back causing more pain. I’ve learned in all my research that the techniques used during surgery (handling of organs, types of gloves, etc..) are crucial in trying to minimize adhesions. It wasn’t until my 6th abdominal surgery, that I came across this information and I can tell you first hand adhesions are painful causing our organs to stick together so every time you move you hav pain. If adhesions are what’s happening with you I know I have found 1 doctor so far that specializes in nothing but chronic pelvic pain, adhesions, endometriosis, he is Dr Cook in Los Gatos, Ca. I’m currently searching for other doctors like this throughout th US because no all of us can go to California and will post names as I find them. I hope this helps somewhat.
Good luck!!
Cindy

Jan 11, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Thank you John! This information is very much appreciated!
Sincerely,
Cindy

Jan 11, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Teresa,
I cannot say thank you enough for this information and all the other info and links from the other mentors, moderators and members. GOD Bless you all!! I will keep everyone posted as with what I learn and who I see so that it can b shared.
Sincerely,
Cindy

Jan 11, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Teresa, I cannot tell you how many specialists I’ve seen and have gone from UCSF, Stanford, University of Columbia in Missouri etc. I’ve been my biggest advocate for years an as I read one of these posts earlier the person mentioned “knowing your body better than anybody else” I have to agree 100%. These adhesion had gotten so bad starting in 2012 and after having donnevery test imaginable (ct, mri, colonoscopy, upper endoscopy, ultra sound and X-rays NOTHING was showing up for the case of this excruciating pain, weight loss and bruising. Finally my OB/GYN talked a general surgeon into exploratory surgery and they found the adhesions had formed between my abdominal wall and large intestine. Every time I moved or move it pulls the intestines and the doctors said it was so bad that I could have lost my life.
I’m sorry this is so long am to answer your question in regards to Mayo Clinic, no I have no been referred there yet but I’m ready to talk to my PCP about getting my a referral sent. There is a doctor in Los Gatos, Ca that specializes in nothing but endometriosis, abdominal adhesions and Chronic Pelvic Pain by the name of Dr Cook but the out of pocket for me would cost $20,000-$30,000 and that’s with great health benefits. I had to resign from my last job and have not worked for 4 years so coming up with that kind of money is next to impossible.
I do know that 5 states have legislatively recognized that this is a disease which is referred to as ARD adhesion related disease, but there just isn’t a lot of research being done for people suffering with these kind o issues. I appreciate this connection as I have always known and believed that men and women have had these kinds of problems way before me and I’m hoping we can all connect and share notes, experiences, information, anything that can help us relieve this pain to live with some sort of quality of life.
Again, thank you for the advise and I’m sorry this is so long!

Jan 10, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi my name is Cindy! I’m very new to this group and wanted to start by saying “thank you” to everybody for sharing their stories. I have been living with chronic abdominal pain for almost 10 years now. Having 5 c-section, 5 laparoscopic surgeries, and a full hysterectomy has landed me almost completely bed ridden. My body produces an abnormal amount of scar tissue which has literally left me stuck together inside. Over the last 2 years th pain has gotten to where it’s never below an 8 on the pain scale and I have weird abdominal bruising from my pelvis all the way up past my belly button. My surgeon sent to a dermatologist thinking it wa some sort of skin n disorder and the dermatologist confirmed that it internal bruising! Every time I move I pull inside.
I don’t believe I was meant to be in pain medication the rest of my life but this is the conclusion the medical doctors have all told me.
Any help or advice would be greatly appreciated!
God Bless! Cindy