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Posts (11)

May 30, 2018 · Seizure control: I can't seem to get any help in Epilepsy & Seizures

I started Keppra 2 weeks ago. Starting to feel much better. (less side effects) It's early in the process but I'm staying positive.

May 30, 2018 · Seizure control: I can't seem to get any help in Epilepsy & Seizures

I wanted to let people know that after 20 years of the same doctor and 8 different meds with no seizure control it was time to move on. He seemed happy with just letting me go through life over medicated and no seizure control. I'm telling people not to wait as long as I did. My local doctor just wasn't willing to look at the facts. I found a doctor that is willing to work with me. What a difference working with people that care. I'm hoping Keppra works. The side effects are better then they have been for long time.

Feb 4, 2018 · magnesium levels and epilepsy? in Epilepsy & Seizures

Unfortunately I don’t have any experience on these topics. I hope you find the information you’re looking for.

Jan 12, 2018 · Planning Visit for Epilepsy in Epilepsy & Seizures

@sam_nova I don’t have any experience with Mayo but I’ve been living with epilepsy for about the same length of time. I’m starting the process over again next week. I’m not sure what tests they are going to call for but hopefully the technology is better then the last time I had the tests done. I hope you find the help that your looking for at Mayo. It sounds like a lot of people that really care. Good luck.

Jan 9, 2018 · Seizure control: I can't seem to get any help in Epilepsy & Seizures

I’m very sorry that you have to deal with cancer. I have lost both of my parents to cancer so I’ve seen how it affects people. Just know that i’m praying for you. I can’t believe how supportive everyone is here. It’s been great to find a place where you don’t feel “different”. I’m confident that 2018 is going to be a great year.

Jan 7, 2018 · Seizure control: I can't seem to get any help in Epilepsy & Seizures

It is very discouraging and frustrating. I can’t say that I get angry though. It’s nobodies fault and I don’t expect miracles from anyone. I can never give up trying for a “normal” life though.

Jan 7, 2018 · Seizure control: I can't seem to get any help in Epilepsy & Seizures

Thank you very much for your response. I have had doctors try to get me on anxiety medicine for awhile but I don’t think it’s my problem. I’ve found that the more medicine I take, regardless what for, the worse I feel. The seizure pattern doesn’t change and that’s the core of all of my problems.

Jan 7, 2018 · Seizure control: I can't seem to get any help in Epilepsy & Seizures

It’s amazing to talk to others that have experienced my situation. I haven’t come across many people in my lifetime that understand epilepsy. My existing doctor has been good at throwing medicine at it for many years now. I don’t expect him to snap his fingers and fix everything but I feel like the effort isn’t there. He might feel like since he’s been dealing with me for so long, there is just nothing else he can do. I understand that but I’ve heard of so many positive stories that I’m not going to settle for a life like this. I want to try my best to get better so I can be there for my son.