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Posts (5)

Apr 4, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I called to make an appointment today at the Mayo in Minnesota, I called a few weeks ago, and was told to try back today because I wanted an appointment in late June. When I called previously the person that answered the phone was very abrupt and told me that Dr. Pardi does not see patients for this… he just wrote a paper on it. When I asked who specializes in this, they said I would have to see one of the general GI docs. When I called this afternoon they had the same attitude, like I was disrupting their day. Not friendly at all. I was told that there is only a Glen Alexander, no Jason Alexander and that he doesn't see patients for MP. I again asked about Dr. Pardi and was told that he rarely sees patients but might be available for the dates that I was looking for. They want me to call next week when the appointment calendar becomes available. Has anyone else experienced this issue when trying to make an appointment? Should they advise if there is a doctor who specializes in this? Are the doctors as cold as the person answering the phone?

Apr 4, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I've read that Dr. Pardi is who is recommended for mesenteric panniculitis, when I called the GI department I was told that this is not his specialty, that he just wrote a paper on it. Has anyone else been told this? Who is the preferred doctor to see?
Thanks for any information.
Cindy

Jan 1, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi Von, thank you for your response. I have decided to be proactive an make an appointment at the Mayo. I was wondering….when you went, were you there for more than the day? What did your bring with you for your appointment? Did they do further testing and if so, how long did it take to go over the results with you? Did they give you a course of treatment? I would have to fly in from Rhode Island and didn’t know how long to plan my stay for.
Thanks,
Cindy Connors

Dec 28, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I was diagnosed 10 years ago when I had recurrent stomach pain. A CT was done and showed MP. My surgeon did a biopsy. I also was told that I had some sort of non-cancerous tumor. I went for a 6 month recheck and the tumor was gone. For the past two years I have had a lot of upper abdominal pain and nausea. My GI did an endoscopy and said that it was GERD. I went to the ER in May for the pain, they did a CT scan and it again showed MP. I went again two weeks ago. Another CT was done and showed mild MP. I followed up with my GI and he wants to do a colonoscopy and endoscopy to make sure that he isn’t missing anything. I was put on 40mg of prednisone with a taper. When that is done he prescribed azathioprine. Before taking such a heavy duty medication I wanted to do more research.
1. If MP can be caused my different cancers, and other things, how are these ruled out?
2. Who do I see about ruling out other underlying conditions.
3. Has anyone else ever heard about taking this medication for MP.
I asked what would happen if I chose no medication. He said that living with inflammation of the MP could actually cause cancer. I feel like I am being forced to choose between the two evils. Possible cancer if I do nothing and possible cancer from taking this immune suppressing medication. I read posts of people choosing to be seen at the Mayo. Does their insurance usually cover out of network?
Sorry for so many questions! I’m finding this a little overwhelming and don’t know what the first step should be.
Thanks!

Dec 28, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi Lisa, I was diagnosed with MP 10 years ago, has recently come back. I tried to find your facebook page but was unable to. I have a ton of questions and don’t know where to begin. Cindy Connors