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Mon, Jun 22 4:53pm · Visit to Jax. Mayo Clinic in Visiting Mayo Clinic

Hi @jthigpen – Welcome to Connect! As you've already seen, there are plenty of helpful people here who have great thoughts and experience to share. I agree with the others that bringing your binder is a good idea. Also agree that since your appointment is tomorrow, if you have not yet gotten an itinerary, go on the portal and print one out for yourself – or just download the app on your phone so you can get to it. A lot of times I print mine, then I take notes on it for future reference. The other tip I would offer is one that was shared here some time ago… first, be sure to have your top several questions listed in writing. That way, if things get overwhelming, at least you are able to get to those crucial items. Second, end by asking if there is anything you have not asked that the doctor thinks you should now. And finally, ask the doctor or PA what is the best way to follow up if you have questions later. (My doctor and PA are always happy to answer over the portal and this doesn't disrupt them, but it doesn't hurt to ask just to clarify.) Good luck. Will you keep us posted on how things go tomorrow? AND, if after your visit, there are things you wish you'd learned here on Connect, will you come back and tell us so we can help others in a similar situation?

Sat, Jun 6 7:18pm · Repost: I Tried a Mediterranean Diet Meal Delivery Kit for a Week in Living with Mild Cognitive Impairment (MCI)

That's good information @drmelaniechandler – I appreciate your thought that the serving sizes may be driving the calories. I'm going to check it out. Also LOVE the idea of making an extra veggie on the side. When I was younger, your goals were mine – feed the family with a minimum of prep work. Now in my life, I have more time. I don't mind the prep – what I'm looking for in meal services is a way to add some variety to our meals w/o making it a big increase in calories.

Tue, Jun 2 4:41pm · Repost: I Tried a Mediterranean Diet Meal Delivery Kit for a Week in Living with Mild Cognitive Impairment (MCI)

I actually did look into ordering from several of the meal services last week. As you mentioned, I've been cooking a lot more at home and wanted some variety. When I looked at Hello Fresh and even their more "healthy" sister company – I think it was Green Leaf. I was surprised at the number of calories in each meal. Sometimes it was 800 – 900 calories for a dinner. That wouldn't leave me hardly any left for breakfast and lunch. Between the calories and the price, I decided against it. But, if anyone has recommendations for a service that has reasonable calories, I would be interested.

Wed, May 20 4:02pm · Wrap up: Creating your Resiliency Roadmap in Living with Mild Cognitive Impairment (MCI)

Thanks so much for bringing us a great program.

Wed, May 20 4:00pm · Day 8: Creating your Resiliency Roadmap in Living with Mild Cognitive Impairment (MCI)

I'm just playing catch up here. Maintaining social connections can be a real challenge with most of us just now even beginning to ease up on "stay at home" orders. I'm not ready yet to go back to physical get-togethers and meetings, but I'm trying to stay connected with Book Club and some of my other meetings by Zoom. Also, sometimes with our children we are doing Video chats.

Mon, May 18 4:23pm · Husband has Essential Thrombocythemia (ET) & MCI in Blood Cancers & Disorders

Hi @tresman10 – The best information I ever got was from a 6-week program called The Savvy Caregiver that our local Council on Aging provided free. The program was originally developed by a group from the University of Minnesota and it is excellent – providing advice for all the stages of dementia. It begins with the time right after diagnosis and goes through all the way to end-stage dementia. It gives the caretaker advice on how to assess risks, how to relieve stress and many many other important topics. You can get the manual at this address:

https://www.hcinteractive.com/files/pdf/SavvyCaregiverManual.pdf

It's 176 pages but its packed with down-to-earth guidance for day to day lifel. If you can't take the course, I would download the manual. In fact, I've taken the course and I still downloaded the manual for reference. Could you take a look and see if this is something you would find useful?

Sat, May 16 6:47pm · Husband has Essential Thrombocythemia (ET) & MCI in Blood Cancers & Disorders

@tresman10 – I totally understand the issues about getting connected with HABIT. You mention the wrist watch and that's a good idea. Also, a bunch of people in my HABIT Alumni group have bought the dementia clock. It shows the day, time, day of week, etc. There are a number of them on the market and I'm not recommending one or another. I'm just going to give you a link so you can see what I'm talking about.

https://www.amazon.com/dp/B078KDDY74?tag=ecservice-20&linkCode=ogi&th=1&psc=1

I'm going to buy one for my husband for Father's Day. Does this sound like something that would be beneficial in your house?

Thu, May 14 4:50pm · Husband has Essential Thrombocythemia (ET) & MCI in Blood Cancers & Disorders

Hi @tresman10 Welcome to Mayo Connect. I am so sorry to hear about your husband’s diagnosis. I know from experience how unsettling the news about MCI can be and how badly it hurts to watch the love of your life face a series of heart-wrenching losses.

My husband was diagnosed in 2015 with Mild Cognitive Impairment. At this point it has progressed substantially, but I can share with you three things that have brought me a huge amount of comfort.

First, Mayo has a program called HABIT (Healthy Actions to Benefit Independence and Thinking). It’s a two week program that helps the person diagnosed and the partner learn how to deal with the “new normal.” I can’t even tell you how valuable this program was to us as a couple and to our extended family. Here’s a link so you can watch a video about the program.

https://www.mayoclinic.org/departments-centers/psychiatry/services/habit-program

If there is any way you can get involved with HABIT, I highly recommend it.

Second, I joined a Caregivers Support Group at our local Council on Aging. With the virus rampant now, they even offer support services on line. It’s just a godsend to be able to talk to others in the same boat and know how they are handling it.

Third, I found an understanding, compassionate therapist for ME. It is such a relief to have someone looking out for me while I am caring for my husband.
The HABIT program, my support group and my therapist have brought me tremendous peace of mind. Through them, I have learned that you CANNOT do this alone. Could you check into the HABIT program and see if it’s a fit for you? Also, do you think it could work for you to look for a support group and seek out a therapist/counselor for yourself?