About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (164)

Dec 21, 2019 · This and That and Talk - My Transplant in Transplants

Hi Rosemary,
I am doing good I just graduated from physical therapy on Wednesday of this week and am working on getting rid of the cane that I use slow process but getting better and stronger every day next month I go to Rochester MN for my 9 year post transplant check-up and right heart cath and angiogram which I only have those every 2 years now and I am hoping to be able to do some traveling this coming summer to visit family I have been pretty well other then one time this year when I had to have antibiotics for a little over a month it took me having to go to Rochester MN in October to get me the right antibiotics to help me get better I had a severe UTI so when the other 2 antibiotics didn't work my team told me to come see them and the infectious disease doctor so glad I did as they diagnosed it and gave me the antibiotic to get rid of it I work out at the YMCA twice a week and walk as much as possible to keep going strength from the accident but it is and will still be a slow process of getting stronger again I would like to wish you a merry Christmas and happy New year
@glinda

Nov 26, 2019 · Heart transplant recovery: What to expect? in Transplants

@dennisprater any type of exercise is great and don't push yourself work at your own pace don't be in a hurry to get to where you were before your transplant it took me 3 years after my transplant to get back to where I was in walking and I took it slow per my doctor's orders I think you are doing great myself you have to remember everyone is different what's works or is good for one mat not be for someone else so don't be to hard on yourself as I say I think you are doing great but if you are worried talk to your transplant team on their opinion as to how you are doing.
@glinda

Nov 26, 2019 · Heart transplant recovery: What to expect? in Transplants

Hi @dennisprater my name is Glinda and I am a heart transplant patient going on 9 years post transplant on the 20th of January of this coming year.
I don't know if it's normal to have a big muscle loss after transplant after 20 months or not as I never had that problem with muscle loss after my transplant but I was in great shape before my transplant as I walked 10 to 15 miles a day in my driveway as it was a half mile driveway even after my heart attack I was still in good shape according to my doctor's and I was a caregiver also so I had to stay strong I do know that I was tired for about a week but my team had me up and walking a week after my transplant as I had medication issues with the steroids but I know also that I had no muscle problems after my transplant I had my doctor's telling me not to overdue it and to take it easy not walk all day needless to say I drove all my caregivers crazy as I wanted to walk all day and keep moving and my caregivers were all strangers to me. I don't know if this will help you or not what I just wrote. But if you would like to talk at anytime I am always here and available for you to talk to I do have a suggestion for you talk to your transplant team on your muscle strenghth and let them know you are worried it might just be that they need to have your medicines twerked a little or some changed to help. And remember everyone is different in their recovery and recovery time. But try talking to your transplant team that's what they are doing here for to help you answer these questions and I will help you also if I am able @glinda

Oct 27, 2019 · Changes after Transplant in Transplants

Your very welcome anytime

Oct 27, 2019 · Changes after Transplant in Transplants

I have been lucky when I usually get the chills it's do to my blood count being low as for a fever for me I only get that when I get a bacterial infection and I dehydrate which is the case for me right now not the dehydration but the fever from the bacterial infection but when I get the chills it scares me a lot as I had the chills all the way but to being told I needed a heart transplant to having the transplant what scares me the most isn't getting a fever it the chance of getting a virus like a cold as that was what destroyed my original heart was a cold that's what I worry about

Oct 27, 2019 · Changes after Transplant in Transplants

Good keep the attitude up I know all about getting viruses I usually get them once or twice a year as I have severe allergies and severe chronic ashtma but the year I was lucky if you want to say that no viruses but a month of a bacterial infection and am going on week 3 of antibiotics but this is my third antibiotic that I am on for the month as the first two didn't work and I haven't been able to go to the YMCA here except once since I got the infection have been to tired and worn out have done some walking but not for more then 15 minutes at a time then I have to stop I so can't wait to get back to the Y as I hate not exersing I can tell you as long as you keep working at exercising it will get better and you will get stronger and keep all the other stuff playing you under control and at Bay just keep listening to your doctors and yourself and if you can't exercise a whole lot right now even just walking to your car and back is exercise even a little bit helps trust me I know I wasn't able to walk lat year for 4 and a half months wasn't even allowed to move my legs do to my accident so as I say every little bit will help.
I will always be here any time you want or need to talk even if it's for a little encouragement I will be here just wanted to let you know
Glinda

Oct 27, 2019 · Changes after Transplant in Transplants

@ danab my I ask one other question are you able to tell when you iron and blood count and hemoglobin is low? I myself know when it is as I get extremely tired and I'm always freezing. I hope the question is not to personal
Thanks glinda

Oct 27, 2019 · Changes after Transplant in Transplants

Hi contentandwell I can't say if it is normal for every heart transplant patient I do know that I had the same problem for years that danab has but now I am stable I never miss my iron either
glinda