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Posts (136)

Sun, Mar 31 10:59am · This and That and Talk - My Transplant in Transplants

Hi Rosemary, hope you are feeling better, I do take longer to heal myself since the transplant the doctors tell me the pain will ease up eventually but all I can do is wait exercising at the YMCA helps I find and as long as I don't sit for a long time or stand for a long time it's not do bad the pain is better when I'm moving sleeping is the hardest for me as I can't straighten my right leg out all the way it is always slightly bent even when I walk which is only about 10minutes at a time the walking I mean it's not easy but I won't and don't give up on myself I hope to be able to walk at least 10 thousand steps again some day but not up or down hill as I can't even do stairs except for one step at a time. It wouldn't be do bad but I'm not allowed to live by myself now because of the risk of falling my transplant team won't let me so I have been staying with a friend since the accident and my friend drives me crazy sometimes as always telling me what I can and cannot do but I have to admit that I have pushed myself to far a couple of times and severely over did things when my body isn't ready for 2 to 3 hour standing especially in a line. So I guess my friend has the right to boss me around for my own good. Take care
Always glinda

Sat, Mar 30 6:05pm · This and That and Talk - My Transplant in Transplants

Hi Rosemary, I'm actually doing good it's been 1 year and 1 month since I was hit by the car but I'm getting stronger everyday I passed my yearly physical in January of this year it's hard to believe I am 8 years post transplant(heart) I have finished physical therapy now and I work out at the YMCA here but found out that my right leg has arthritis in it now where the steel screws and plate is that's the only thing that isn't as strong as I would like is my right leg the pain never goes away and I can't take any anti inflammatory medication for due to transplant I still struggle with anxiety and the PTSD but I thank God for my counselor she helps a lot the only problem I have is I still have brain fog after all the surgeries I had to have last year and it frustrates me because I have trouble remembering the dimple things that I used to know and remember just wanted to say Hi and update everyone on how I'm doing I may not be on here a lot but I try to check my posts for mayo connect every day I'm just working on getting stronger and better right now thanks for listening when I need to talk.
Always Glinda

Thu, Feb 14 8:58am · Heart transplant in Transplants

Hi @dnab, my name is glinda I to have had a heart transplant I am 8 years post transplant as of January 20th of this year I caught a hold that destroyed my heart and waited from December 23rd of 2005 to January 20th of 2011 to get my heart as I am 0+ and it is extremely rare to get an o+ heart so yes it depends on the blood and tissue type also as to when you get the heart I got mine exactly 2days before my family would have been planning my funeral as my heart was that bad it was pure scar tissue and I never knew I had the heart attack as all I had was asthma symptoms but I had an ICD implanted in 2006 do to fainting and also had the home IV to keep my heart beating as my ef was not even 4% percent and I wasn't getting even a quarter of my blood that was oyxgenated by the time I had the transplant. So glad that you didn't have to wait long for yours and that you are doing great I just wanted to introduce myself and give you a little history on me and my journey to having to have the transplant feel free to ask me questions anytime
Glinda

Dec 31, 2018 · Muscular pain relief in Transplants

Hi,@des46893
My name is glinda I'm not a liver transplant patient but I am a heart transplant patient 8years the 20th of January and I'm not allowed to use nsaids either but I did get special permission for voltaren gel to use on my hands from my transplant team but only as needed I do use lidocaine gel for my not stop pain in my legs and hip do to an accident this year and the voltaren gel on my hands for tendonitis and arthritis I know it works well for me when nothing else will
@glinda

Nov 7, 2018 · Post-Intensive Care Syndrome (PICS) - Let's talk in Intensive Care (ICU)

For me it's the situation that I'm in But I do practice all of them every day as much as possible because some might work for a person and some might not I also play a game of solitaire on my phone if the grounding doesn't work for me or the situation is bad for me. My adice is to practice each one until a situation comes up then try one technique first if that doesn't work then try one of the others until that person finds what works for them. I try to remember to practice daily until I have the ways of grounding down I myself use the one of a sentence or the first sentence in a song I do that one at night in my head as I don't get to sleep right away at night but I would say practice each one everyday until the right one way works for a person then they can use that to make the grounding personal for them which means thinking of something they are comfortable with and use that in their grounding. Glad I could help. Glinda

Nov 7, 2018 · This and That and Talk - My Transplant in Transplants

Hi I'm glinda a heart transplant patient going on 8 years post transplant just wanted to let you I don't need a mask anymore but I still wear one anytime I go out or to appointments I won't take chances with my heart as I have first hand experience on how dangerous bacteria, and viruses can be especially the cold viruses as that's what destroyed my original heart so I say wear the mask if you want to and if you feel safer with it I don't go out of my apartment without mine on glinda

Nov 7, 2018 · Post-Intensive Care Syndrome (PICS) - Let's talk in Intensive Care (ICU)

Physical therapy helps a lot and so does heat and mineral ice ointment and the little walking I'm able to do right now

Nov 7, 2018 · Post-Intensive Care Syndrome (PICS) - Let's talk in Intensive Care (ICU)

Hi Colleen young, I'm actually doing pretty good I'm ahead of schedule with my physical therapy I graduated from my 4 wheel walker to a cane 3 weeks ago yesterday balance without the cane is not the best. And I still struggle everyday with my PTSD most days it's not so bad the PTSD that is, I go to bed every night in pain and wake up every morning in pain do to both legs being broken and have the permanent steel plates and screws and I have continuous pain in my right hip for the same reason but I only have the one steel screw in the hip my stomach has healed nicely from my ostyme and illiostyme reversal although one side is flatter then the other walking is good not a lot of pain when I walk but sitting and standing are bad as my knees and my hip stiffen up and get painful my bones are all completely healed now and as of last month I was finally taken off the tacrolimus thank the Lord as I get migraine headaches from it especially if I don't catch the headache as it starts, they put me back on my sirolimus (rapamune) but we are having trouble with getting the levels where they need to be they go up one time then drop down again hopefully it will start to level out soon I'm so tried of being poked every week to two weeks it seems that blood draws and physical & occupational therapy is my whole life right now but have to go it the orthopedic surgeon that I see here told me I could have the severe pain I have every day for up to three years if not longer it will eventually ease up but not go away all together but I'm taking one day at a time thanks glinda