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Sun, Jul 7 5:32pm · Reunion get together at Rochester in Transplants

I plan on going to the picnic it will bey first year but first I have to get registered and I keep going to the transplant picnic @gmail .com but all it does is go to the transplant house page and doesn't show where to register for it and I don't know how else I can register do you have any ideas thanks Glinda

Sun, Jul 7 4:51pm · Reunion get together at Rochester in Transplants

Hi, rosemary
I just have a question for you I have been trying to register for the transplant picnic in Rochester and I keep going to where I'm supposed to but there is no place on the page for the picnic for me to register it just goes to the transplant house page I was wondering if there is any other way I could register for the picnic this year if you could help I would greatly appreciate it
Thank you glinda

Wed, Jun 5 4:08pm · Preparing for a heart transplant in Transplants

@jbilton, yes they did wait to put me on the list until I could put my daughter in an adult family home for specials needs adults my son can live on his own with help from an aid and my mom had help from an aid when I had my transplant it actually is easier for any other blood type for transplant but it is still hard to get a heart transplant due to the shortage of organ donors for transplantation but I always had faith in mayo and they will tell you like it is they will be honest with you on your tests and on your waiting for transplant if you are a candidate trust Mayo, can't tell you how long your wait would be as everyone is different when waiting for a transplant due to how severely I'll you are I was stable from 2005 to 2009with my cardoimyopathy with ridgety
Glinda

Wed, Jun 5 3:10pm · Preparing for a heart transplant in Transplants

Hi @jbilton, my name is Glinda and I had a heart transplant 8years and 5 months ago my evaluation took around a three week period for all my testing I went through seeing cardiologists, dental surgeons, lab work, infectious disease, genetics testing, right heat catherisation and angiogram, breathing tests besides seeing so many different specialists like dermatology and eye specialists. For me it was an on going process from 2005 to Jan of 2011 my wait was that long due to having 2 special needs kids and a mother to take care of and also because I am 0 positive for tissue and blood type. It is extremely hard to get an 0 positive heart compared to other blood types 0 positive people don't like yo donate their organs. If I am not being to personal and may ask you what blood type is your husband do you know?
I hope this helps you some for answers and if you have anymore questions please feel free to contact me here on mayo connect at any time.
Hugs to you and your husband
Glinda

Fri, May 31 1:25pm · This and That and Talk - My Transplant in Transplants

Hi Rodney,
I'm Glinda and I am a heart transplant patient 8 years and 5 months post transplant and I have had to take magnesium since my transplant and I also take protonix

Sun, Mar 31 10:59am · This and That and Talk - My Transplant in Transplants

Hi Rosemary, hope you are feeling better, I do take longer to heal myself since the transplant the doctors tell me the pain will ease up eventually but all I can do is wait exercising at the YMCA helps I find and as long as I don't sit for a long time or stand for a long time it's not do bad the pain is better when I'm moving sleeping is the hardest for me as I can't straighten my right leg out all the way it is always slightly bent even when I walk which is only about 10minutes at a time the walking I mean it's not easy but I won't and don't give up on myself I hope to be able to walk at least 10 thousand steps again some day but not up or down hill as I can't even do stairs except for one step at a time. It wouldn't be do bad but I'm not allowed to live by myself now because of the risk of falling my transplant team won't let me so I have been staying with a friend since the accident and my friend drives me crazy sometimes as always telling me what I can and cannot do but I have to admit that I have pushed myself to far a couple of times and severely over did things when my body isn't ready for 2 to 3 hour standing especially in a line. So I guess my friend has the right to boss me around for my own good. Take care
Always glinda

Sat, Mar 30 6:05pm · This and That and Talk - My Transplant in Transplants

Hi Rosemary, I'm actually doing good it's been 1 year and 1 month since I was hit by the car but I'm getting stronger everyday I passed my yearly physical in January of this year it's hard to believe I am 8 years post transplant(heart) I have finished physical therapy now and I work out at the YMCA here but found out that my right leg has arthritis in it now where the steel screws and plate is that's the only thing that isn't as strong as I would like is my right leg the pain never goes away and I can't take any anti inflammatory medication for due to transplant I still struggle with anxiety and the PTSD but I thank God for my counselor she helps a lot the only problem I have is I still have brain fog after all the surgeries I had to have last year and it frustrates me because I have trouble remembering the dimple things that I used to know and remember just wanted to say Hi and update everyone on how I'm doing I may not be on here a lot but I try to check my posts for mayo connect every day I'm just working on getting stronger and better right now thanks for listening when I need to talk.
Always Glinda

Thu, Feb 14 8:58am · Heart transplant in Transplants

Hi @dnab, my name is glinda I to have had a heart transplant I am 8 years post transplant as of January 20th of this year I caught a hold that destroyed my heart and waited from December 23rd of 2005 to January 20th of 2011 to get my heart as I am 0+ and it is extremely rare to get an o+ heart so yes it depends on the blood and tissue type also as to when you get the heart I got mine exactly 2days before my family would have been planning my funeral as my heart was that bad it was pure scar tissue and I never knew I had the heart attack as all I had was asthma symptoms but I had an ICD implanted in 2006 do to fainting and also had the home IV to keep my heart beating as my ef was not even 4% percent and I wasn't getting even a quarter of my blood that was oyxgenated by the time I had the transplant. So glad that you didn't have to wait long for yours and that you are doing great I just wanted to introduce myself and give you a little history on me and my journey to having to have the transplant feel free to ask me questions anytime
Glinda