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Posts (134)

Thu, Feb 14 8:58am · Heart transplant in Transplants

Hi @dnab, my name is glinda I to have had a heart transplant I am 8 years post transplant as of January 20th of this year I caught a hold that destroyed my heart and waited from December 23rd of 2005 to January 20th of 2011 to get my heart as I am 0+ and it is extremely rare to get an o+ heart so yes it depends on the blood and tissue type also as to when you get the heart I got mine exactly 2days before my family would have been planning my funeral as my heart was that bad it was pure scar tissue and I never knew I had the heart attack as all I had was asthma symptoms but I had an ICD implanted in 2006 do to fainting and also had the home IV to keep my heart beating as my ef was not even 4% percent and I wasn't getting even a quarter of my blood that was oyxgenated by the time I had the transplant. So glad that you didn't have to wait long for yours and that you are doing great I just wanted to introduce myself and give you a little history on me and my journey to having to have the transplant feel free to ask me questions anytime

Dec 31, 2018 · Muscular pain relief in Transplants

My name is glinda I'm not a liver transplant patient but I am a heart transplant patient 8years the 20th of January and I'm not allowed to use nsaids either but I did get special permission for voltaren gel to use on my hands from my transplant team but only as needed I do use lidocaine gel for my not stop pain in my legs and hip do to an accident this year and the voltaren gel on my hands for tendonitis and arthritis I know it works well for me when nothing else will

Nov 7, 2018 · Post-Intensive Care Syndrome (PICS) - Let's talk in Intensive Care (ICU)

For me it's the situation that I'm in But I do practice all of them every day as much as possible because some might work for a person and some might not I also play a game of solitaire on my phone if the grounding doesn't work for me or the situation is bad for me. My adice is to practice each one until a situation comes up then try one technique first if that doesn't work then try one of the others until that person finds what works for them. I try to remember to practice daily until I have the ways of grounding down I myself use the one of a sentence or the first sentence in a song I do that one at night in my head as I don't get to sleep right away at night but I would say practice each one everyday until the right one way works for a person then they can use that to make the grounding personal for them which means thinking of something they are comfortable with and use that in their grounding. Glad I could help. Glinda

Nov 7, 2018 · This and That and Talk - My Transplant in Transplants

Hi I'm glinda a heart transplant patient going on 8 years post transplant just wanted to let you I don't need a mask anymore but I still wear one anytime I go out or to appointments I won't take chances with my heart as I have first hand experience on how dangerous bacteria, and viruses can be especially the cold viruses as that's what destroyed my original heart so I say wear the mask if you want to and if you feel safer with it I don't go out of my apartment without mine on glinda

Nov 7, 2018 · Post-Intensive Care Syndrome (PICS) - Let's talk in Intensive Care (ICU)

Physical therapy helps a lot and so does heat and mineral ice ointment and the little walking I'm able to do right now

Nov 7, 2018 · Post-Intensive Care Syndrome (PICS) - Let's talk in Intensive Care (ICU)

Hi Colleen young, I'm actually doing pretty good I'm ahead of schedule with my physical therapy I graduated from my 4 wheel walker to a cane 3 weeks ago yesterday balance without the cane is not the best. And I still struggle everyday with my PTSD most days it's not so bad the PTSD that is, I go to bed every night in pain and wake up every morning in pain do to both legs being broken and have the permanent steel plates and screws and I have continuous pain in my right hip for the same reason but I only have the one steel screw in the hip my stomach has healed nicely from my ostyme and illiostyme reversal although one side is flatter then the other walking is good not a lot of pain when I walk but sitting and standing are bad as my knees and my hip stiffen up and get painful my bones are all completely healed now and as of last month I was finally taken off the tacrolimus thank the Lord as I get migraine headaches from it especially if I don't catch the headache as it starts, they put me back on my sirolimus (rapamune) but we are having trouble with getting the levels where they need to be they go up one time then drop down again hopefully it will start to level out soon I'm so tried of being poked every week to two weeks it seems that blood draws and physical & occupational therapy is my whole life right now but have to go it the orthopedic surgeon that I see here told me I could have the severe pain I have every day for up to three years if not longer it will eventually ease up but not go away all together but I'm taking one day at a time thanks glinda

Nov 7, 2018 · Post-Intensive Care Syndrome (PICS) - Let's talk in Intensive Care (ICU)

Hi mommjonie6, I'm glinda nice to meet you I know how you are feeling especially with the nightmares I didn't have the same experience that you did but I to have nightmares and sadness and I also have panic attacks and anxiety so it sounds like to me that you might be suffering from PTSD and yes I am glad you are going to see another therapist if this one laughs don't give up keep trying but if this one doesn't laugh my suggestion is to ask her about PTSD and instead of seeing a phsycologist try seeing a phsyciatrist they can help you also I have meds that I take now only if I'm extremely anxious or having a panic attack because of my PTSD and depression is just one symptom of PTSD I'm not saying you have PTSD but it won't hurt to talk to the therapist about it. If at anytime you would like to talk just let me know I'm always willing to talk or even just listen if that's all you need is for me to do anytime I will always be here. I actually live here in Wisconsin myself I live in Eau Claire WI. And I go to Rochester also as I'm a heart transplant going on 8 years post transplant on the 20th of January so I do understand your feelings very well hope this can help you. Glinda

Nov 6, 2018 · Post-Intensive Care Syndrome (PICS) - Let's talk in Intensive Care (ICU)

Hi, @colleenyoung,
Grounding is when you move away from your emotions you feel with a PTSD episode which you could have depression, anxiety, panick attacks, and saddeness. Groumding is for emotional pain which is what PTSD is what grounding does is make you feel safe it puts a healthy distance between you and those negative feelings.when grounding keep your eyes open, scan the room and turn the light ght on to stay in touch with the present.you use grounding when you are: faced with a trigger, or having a flashback, disassociating, having a substance craving, or when your emotional pain goes above
6 (on a 0 to 10 scale). There are a few different ways of grounding .
Ways to ground
Mental grounding
1.describe your environment in detail using all your senses for example the walls are white and the describe the whole room using everything from color to shape to size,textures, colors, smells, numbers, and temperature.
2.play a"categories" game with yourself. Try to think of types of dogs and things like that .
3. Do an age progression if you have regressed to a younger age (e.g., 8 years old), you can slowly work your way back up (e.g. "I'm now 9") and so on each year until you are back to your original age .
3.describe an everyday activity in great detail. For example, decsribe a meal that you cook (e.g., First I feel the potatoes and cut them into quarters, then I boil them in water."), And keep going until you have described the whole meal .
4.imagine. use an image: example glide slong on skates away from your pain; change the TV channel and so on.
5say a safety statement. Example: my name is; I am safe right now I am in the present, not the past.
6. Read something, saying each word to yourself. Or read each letter backwards so that you focus on the letters and not the meaning of the words
7. Use humor. Think of something funny to jolt you out of your mood.
8.count to tenor sat the alphabet very s..l..o..w..l..y.
9.repeat a favorite saying to yourself over and over (e.g. the sernity prayer or you could say the first verse of a song). Over and over.
Physical grounding
1. run cool water over your hands.
2.grab tightly onto your chair as hard as you can.
3. Touch various objects around you: a pen. Keys, your clothing. Notice textures, colors, materials, weight ,temperature. Compare objects you touch:touch is one colder, warmer, lighter, or heavier.
4. Dig your heels into the floor – literally "grounding" them! Notice the tensioncenterdin your heels as you do this. Remind yourself that you are connected to the ground.
5. Jump up and down.
6.notice your body: the weight of your body in the chair; wiggling your toes in your socks; the feel of your back against the chair. You are connected to the world.
7. Carry a ground object in your pocket- a small object (a small rock, clay, ring, price of cloth or yarn).
8. Stretch. Extend your fingers, arms or legs as far as you can; roll your head around
9. Walk slowly, noticing each footstep
10. Eat something describe the flavors in detail to yourself
11. Focus on your breathing. Noticing each inhale and exhale. Repeat a pleasent word to yourself on each inhale (for example, a favorite, color or a soothing word such as "safe" or "easy"). Soothing grounding
1.say kind statements as if you were talking to a small child. E g. " You are a good person going through a hard time. You'll get through this" .
2. Think of favorites. Think of your favorite color, animal,season, food, time of day, TV show
3. Picture people you care about (e.g, your children, and look at photographs of them).
Remember a safe place. Describe a place that you find very soothing (perhaps the beach, mountains or a favorite room).
4.Remember the words to an inspiring song, quotation, or poem_that makes you feel better for example the serentiy payer.
5.say a coping statement._ "I can handle this", "This feeling will pass".
5. Plan out a safe treat for yourself, such as a piece of candy, a nice dinner, or a warm bath.
6. Thin of things you are looking forward to in the next week. Perhaps time with a friend or going to a movie .
What if grounding doesn't work.
1.Practice as often as possible. Even when you don't need it.2. practice faster. Speeding up the pace gets you focused on the outside world quickly.
3. Try grounding for a loooooonnnng time(20-30 minutes). And repeat, repeat, repeat.
4. Try to notice whether you do better with "physical" or "mental" grounding.
5. Create your own methods if grounding. Any method you make up may be worth much more than those you read hear because it's yours.
5. Start grounding early in a negative mood cycle. Start when you have just started having a flashback.
Sorry this is so long Colleen but I hope it can help someone else.
Who migt be suffering from PTSD people think it just happens to soldiers but anyone can develop PTSD at anytime after any kind of trauma thanks for asking on grounding and so others know the techniques for grounding do work very well especially if you keep on with practicing them everyday .
Thanks glinfa