Good Afternoon Everybody,
My name is Greg and my daughter was diagnosed with SMAS after about a 9 year journey. She was blown off by doctor after doctor till we found a good Gastro here in the Atlanta area. She was told,during the 9 years everything from get counseling for an eating disorder to well little girls can be emotional. I often wondered how some of them made it through to be a doctor. She has a feeding tube in right now, but isn’t tolerating it as well as we had hoped. A British film company did a short documentary on her for YouTube. If anyone is interested you can search Barcroft TV on YouTube and scroll till you see the one about feeding tube. Anyway, to my question. She was accepted as a patient to the Jacksonville Mayo and told to call the last part of November. When she called they said everything was booked though March. They also said they didn’t know when they would open up April or May appointmentsa d they pretty much blow her off. Customer service was, let’s say, less than helpful.
Sooooo…….how do you get through to anyone? You can’t find any direct dial numbers except to make an appointment. So now what? It is so frustrating. She is married and 24 now and still no end in sight. She wants to finish college and have a family. But can’t do it. Can anyone tell me how to get an appointment. There has got to be a way to get through to someone.
Thank you in advance for any help you can give.