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Dec 13, 2017 · Referral to Mayo declined for Autoimmune or Unknown Condition in Autoimmune Diseases

@kspiel You are not alone. I received an email on Monday and my referral was denied as well. I called yesterday morning and couldn’t be given a satisfactory answer on why I was denied appointment. I understand that Mayo sees millions of people a year and helps many people, but they certainly didn’t even attempt to help me. It has left a bad taste in my mouth as all I am trying to do is seek answers for the diagnosis I have been given of Chronic Pain Syndrome. No one can help me and it is disheartening, I can only help myself. When you go to Mayo’s website the Request an Appointment link is hard to miss and it is even on this site of “Request Appointment.” Underneath Request Appointment it needs to read “Maybe You’ll Get One'”

Dec 12, 2017 · Surgery caused autoimmune disease or Drug Induced Lupus in Autoimmune Diseases

@johnbishop, I called Mayo this morning and got absolutely no where. They cannot give me an answer as to why my appointment was denied, but basically said that the Physicians who reviewed my information didn’t feel that a diagnosis can be made and Mayo cannot help me. I asked why they can’t tell me that and was told that is the way the system is set up. My Dr. can call and speak to a physician at Mayo, but they won’t tell me squat. I understand that Mayo deals with millions of patients a year, but I am pretty disappointed with their standards at this point. In my case I was trying to go there with the hope of finding out what is wrong with me. My hope was crushed with the way it is currently set up to handle appointment denials. Unfortunately I am going to have to live with the fact that in my case a diagnosis cannot be made. I am going to live with the hope that my symptoms will improve over time and will hopefully not worsen.

Dec 11, 2017 · Surgery caused autoimmune disease or Drug Induced Lupus in Autoimmune Diseases

This is the email I received this morning. Typical canned response because it is contradictory. I have already worked with my provider and we determined that going to Mayo Clinic was in my healthcare’s best interest as no one can give me a diagnosis. I have a referral from my Rhuematologist and did an online form explaining my symptoms, etc. Don’t know what else to do? It seems that they think they probably cannot give me a diagnosis is my guess? I do appreciate that being done upfront instead of me missing several days of work and it would be costly to do. These Autoimmune issues are so poorly understood and modern medicine has failed me in this regard as modern medicine has had a direct correlation in causing my issues. I can call and try to get a better answer, but at this point I’m not for sure I want to waste my time. I guess I’m fortunate that what I’m dealing with is most likely not fatal, but it really sucks being in pain day after day after day with no reasonable explanation why I’m suffering from the pain I’m in. There has to be a reason, my body just didn’t decide one day to start the continuous pain without a reason. There is an underlying cause and that is what I was hoping Mayo could help me with. I guess not…

“Thank you for expressing an interest in Mayo Clinic. Your healthcare information has been reviewed by our Physicians in General Internal Medicine and we regret to inform you that we are unable to offer you an appointment. If your medical situation should change, you should seek care locally and work with your provider to determine if a referral to Mayo Clinic is in your best healthcare interests.

General Internal Medicine

This e-mail was automatically generated from a non-response mailbox. Please do not reply to this email.”

Dec 11, 2017 · Referral not found. in Visiting Mayo Clinic

Mayo Clinic notified me today that they won’t even see me. My autoimmune issues must be to difficult to diagnose or maybe a diagnosis can’t even be made at all. Pretty disappointed as the referral wasn’t easy and I don’t know where to turn now?

Dec 11, 2017 · Surgery caused autoimmune disease or Drug Induced Lupus in Autoimmune Diseases

Received an email from Mayo Clinic today stating that I cannot get an appointment with them. Less than impressed with Mayo Clinic. It is touted as the place to go for hard to diagnose diseases and they won’t even see me. Don’t know what I’ll do now?

Dec 1, 2017 · Surgery caused autoimmune disease or Drug Induced Lupus in Autoimmune Diseases

About a month ago I had a Dr. appt. and we discussed whether I should get a flu shot with my autoimmune issues I’m having. It was decided that I probably shouldn’t get a flu shot this year so as to not flare up my symptoms and take the chance of making them worse. Never had Influenza A or B before and wouldn’t you know it…….this is the year I end up with it.

Dec 1, 2017 · Surgery caused autoimmune disease or Drug Induced Lupus in Autoimmune Diseases

@johnbishop Hi John, I have been to my primary care Dr. for the flu. I have been prescribed Tamiflu as well as my wife and kids. No idea how I came down with it as I have never tested positive for the flu before. I’m on day 4 for symptoms and I think my fever may be done. It had gotten to around 101 at its highest. I am controlling the fever with Tylenol. My Dr’s office has only had one other confirmed case of the flu this fall. My pharmacy had to order the medicine as I am their first prescription request this fall. I’m still very ill, but feel like maybe the worst is over. I hope so. I have a bad cough and keep getting the chills and sweats along with a bad headache.

My call from Mayo is in regards to the drug induced lupus/auto immune issues I have been suffering from for several months. The Rheumatology Dept. at Mayo advised me today that my condition doesn’t fit their expertise and they are transferring my referral/medical case to General Internal Medicine. I questioned the lady that called about the drug induced lupus and how they couldn’t help with that? She replied she didn’t know. She said that General Internal Medicine would be calling me in the next 48 hours (I assume business hours, she didn’t clarify) and send me an email with additional questions. If Mayo doesn’t agree to see me based off my symptoms/unknown illness I’m not for sure what I’m going to do. I can’t keep living everyday in pain without answers. I will hold out hope that I can get in with General Medicine and get some answers.

Dec 1, 2017 · Surgery caused autoimmune disease or Drug Induced Lupus in Autoimmune Diseases

Two days ago I tested positive for Influenza B and I am very ill. Never had Influenza before (that I know of) and never want to have it again. It is horrible. Now I know why my symptoms started to worsen at the beginning of the week. My hips and lower back ached horribly. As the virus has progressed the body aches have lessened and now my autoimmune pain is less than it has been in months. I suspect that my immune system fighting off the virus has taken away from attacking my own body.

Mayo Clinic called earlier today and after reviewing my referral the Rheumatology Dept. doesn’t feel that they can help me. My information is being transferred to general medicine so they can review it. I’m a little concerned that no one will be able to help me as the rheumatology dept. seemed like the right fit. They are supposed to email me some questions and call in the next 48 hours.