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Sat, Jan 26 12:55am · Unknown condition, overheating / heat stroke. Any help? in Just Want to Talk

Not sure if this can help you but I live in NYC where we experience all types of temp and weather. Ever since I went on corticosteroid eye drops, i have dealt with a cortisol hormone disorder where it is elevated. I tend to notice that I get dizzy and uncomfortable when temps get above 90+ and/ or it is humid. My BP will go up by around 15 systolic /5 diastolic. Not sure if you sure focus in to your cortisol levels

Sat, Jan 26 12:44am · Elevated Urine Creatinine Clearance in Kidney & Bladder

Thanks for the response. It was actually ran twice, second result was elevated but lower than first result. In the past, these results were normal. Had various tests before these urine tests done: abdominal MRI, kidney ultrasound, and renal doppler. Although I have elevated blood pressure, its seems all the imaging tests came back fine. Not sure if horizontal beau's lines on fingernails and chillblains (also toes sometimes turn black temporarily if I press against it, like having my feet on top of another) has any relations to this.

Sat, Jan 26 12:31am · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic

thank you for your response. Reading these type of experiences give me hope in life.

Sat, Jan 26 12:28am · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic

Hi Dawn, thank you for replying. Sorry for not getting this response earlier. I did have a pitutary mri scan but they only found a micro adenoma. Problem is with the exception of an once mildly high ACTH test, others have come within normal range. Neurosurgeon in NYC recommended a DDAVP test but utilizing the drug can worsen my symptoms of hypertension since that drug promotes fluid retention. I do notice myself sleeping from 9PM to 1AM, and going back to sleep at 4- 5AM. Prior to the corticosteroids, I have never been sick in my life since I was 10 years old (pneumonia). I went on the steroid eye drops at 22 years old for 6 weeks. Noticed during the winters I get this wierd episode of Chillblains, sometimes the toes can turn into a light black color. Not sure if this is due to cortisol induced hypertension. Have horizontal beau's lines on fingernails and occasionally random hemotoma on one of my finger nails. Recently, had 2 tests that showed elevated creatinine clearance in 24 HR urine, but normal creatinine serum. Not sure if all this has any relation to the high cortisol levels and the elevated blood pressure. BP tends to be lower in the winter compared to hot / humid summers.Tired of visiting NYC doctors that cannot provide answers but just charge you

Sun, Jan 20 3:18pm · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic

Thank you so much for your help and sharing your personal experience, Scott.

Sun, Jan 20 3:16pm · Elevated Urine Creatinine Clearance in Kidney & Bladder

The nephrologist does not seem to be concern but i question his abilities to be honest. He was just mumbling during the consultation. I do not have diabetes but can high creatinine clearance be an early marker of diabetes? My fasting glucose and A1C was fine.

Sun, Jan 20 2:34pm · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic

Hi Dawn. Thanks for responding. The physician has not given me any diagnosis since my symptoms are consider mild compared to a classical cushing syndrome patient. They wanted me to do the dexamethasone suppression test and DDAVP test to rule out hormone secreting tumors in the pituitary gland, but I declined since the reason why my health is like this is due to external medication involvemen t (steroid eye drops). The doctors have ruled out adrenal gland tumors due to blood tests and scans. My symptoms and lab reports show that it would be highly unlikely to have a tumor due to mildly elevated results

If you don't mind, How much did it cost for you to visit Mayo per trip (and duration of the trip)? Reason being is that my health insurance is out of network for Mayo, but it is a PPO. I called my carrier, but they did not provide a concise response so I would like to get an idea of how much Mayo would cost from the patients' experience. My main concern is that I might not get the help I need from Mayo but incur a 5 digit medical debt. The last thing I would want is for Mayo to say I don't know or dismiss my symptoms and have to be responsible for a large medical expense. Thanks!

Sun, Jan 20 2:26pm · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic

Hi Scott. Thanks for responding. I am aware of the other 2 satellite campuses Mayo has, but I heard the Rochester campus is supposed to be top notch and there is a quality difference as mentioned on the web.

If you don't mind, How much did it cost for your family to visit Mayo per trip (and duration of the trip)? Reason being is that my health insurance is out of network for Mayo, but it is a PPO. I called my carrier, but they did not provide a concise response so I would like to get an idea of how much Mayo would cost from the patients' experience. My main concern is that I might not get the help I need from Mayo but incur a 5 digit medical debt. The last thing I would want is for Mayo to say I don't know or dismiss my symptoms and have to be responsible for a large medical expense. Thanks!