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Dec 8, 2018 · Daily dosage of Rifampin Ethanbutol and Azithromycin in MAC & Bronchiectasis

I have and I did have ringing in my ears and some hearing loss. You have to weigh out the side effect possibility to how the drug can help. this drug along with the others helped get MAC negative for a year…..it is worth a try

Dec 8, 2018 · Daily dosage of Rifampin Ethanbutol and Azithromycin in MAC & Bronchiectasis

There is research brewing that indicates that three times per week may be as effective as daily. You have to do what you feel you can do.

Feb 27, 2018 · Extreme fatigue in MAC & Bronchiectasis

Yes, it all is very confusing. I was diagnosed four years ago and immediately became a patient of National Jewish Health. I had had multiple bouts of walking pneumonia and finally a smart PA decided to do a CT scan and it was actually MAC all along. They traced it back to another CT scan 7 years prior that was misdiagnosed at an emergency room visit. So treatment was delayed that long. After going to NJH I decided to treat it aggressively with 18 months of antibiotics, I could not tolerate ethambutol so they switched me to inhaled amikacin. I had hearing loss and ringing in the ears. I also had two middle lobectomies in Denver by Dr. Mitchell. The surgeries went well and I finished up my meds and was MAC free for one year. It then raise its ugly head again. I do think it never goes away and sits in wait for the right opportunity to attack us again. Of course, I have bronchiectasis as well. I am not on the meds again except this time I am on a trial of clofozamine. All three times a week. I am headed back to NJH in two months and have monthly blood work for liver function. I too, am constantly tired…I also have a pain across my shoulder blades that comes at the end of the day when I am tired. Not sure what this is..Anyone have that. I get depressed as I just retired and want quality of life as we all do. I try to exercise yet am too tired at times. Happy to answer any questions and I live in California..cheers

Jan 23, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

what herbs are you on and do you find they are effective?

Dec 12, 2017 · Have to start the big three in MAC & Bronchiectasis

You need an infectious disease Dr. not just the pulmonologist. The meds should be taken one at a time so if you react then you know which drug is the cause. Also, a culture should have been taken so they know which drugs will work with your diagnosis. This is my third year dealing with MAC, two lung surgeries and now the second round of drugs. Additionally, you should never just take two drugs, in order to be effective, a third drug needs to be added….

Dec 7, 2017 · Have to start the big three in MAC & Bronchiectasis

I’d stop it if it doesn’t get better. I could feel the drug leaving my body and just couldn’t tolerate it….

Dec 7, 2017 · Have to start the big three in MAC & Bronchiectasis

I had a very bad reaction to Ethambutol, severe muscle aches like a bad flu. I couldn’t get out of bed. Did you start the big 3 one week at a time, adding a new drug after the week? That is so the Dr. can know which drug you can’t tolerate? I had to stop taking that and I was put on inhaled amikacin instead.

best of luch

Dec 6, 2017 · Have to start the big three in MAC & Bronchiectasis

Well I too have MAC and took the big 3. I could not tolerate Ethambutol so my Dr. changed the third one to be inhaled amikacin. If she can tolerate those three that is the usual first response to MAC. Where does she live? Does she have a good ID Dr.? There are ways to build your immune system as well as other things to consider. No more tap water, get a shower head that is steel only with no plastic parts, no hot tubs…do your research….