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Sep 1, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hello Jennifer
I have seen several Neurologist each one says something different seen three at Mayo. The one here said its my heart my Cardiologist says it ain't my heart. I do have several bulging disc C3,C4,C5,C6 and something going on at T10,T11. They tell me they dont think thats my problem. My family Dr keeps saying nephropathy. I have to agree it is something to do with my spine but all the test is not showing anything to warrant a diagnosis. I have seen Neurologist, Lung Dr, Cardiologist, Gastrologist , Pain Dr. They can not come up with a diagnosis. The Drs at Mayo couldnt find any answers they told me I was in the 10 to 12% of the unknown. It doesnt matter what position I am in the pain and pressure comes and goes. The pressure on my chest is constant and gets worse with any activity . The sharp stabbing pains hit at anytime no matter what I am doing. Laying down can cause it to get worse but getting still and resting it will ease up. I do know lifting makes my chest hurt as well in between my shoulder blades. I have asked about a pet scan on my heart and a Hyda scan on my bladder and was told I didn't need one.

Aug 31, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hey John
I have done a lot of research on chest pain and causes but I can not find one article that can explain most of my symptoms. I can find articles with some of my symptoms but thats it. No body can explain the sensitivity from my throat down. I cant hardly stand wearing a shirt it feels like it choking my. A seat belt is the worse. Went I get out of bed my chest starts tightening up. I have to lay down just about everyday to get the pressure and pain to ease up. I get bad sharp stabbing pains in my chest but it moves around. I think the pain between my shoulders is connected to the chest pain. I have a appointment with another neurologist oct. 8th.

Aug 31, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

John
The Doctors are unable to come up with a diagnosis. I have constant pressure and pain in the center of my chest. It gets worse with activity. I have sharp stabbing pain that runs down both arms. Tingling and numbness in my arms and tingling in my legs and feet.Now my fingers are hurting real bad when I try to grip any thing. I have had a bad pain between my shoulder blades for several yrs along with miner chest pain then one day it hit me hard in my chest. I passed every test with no problems. Then 2 days later I was in the ER thinking I was having a heart attack. They did a heart cath and found a blockage 95%. Had two stents put in. Cardiologist was baffled as to why it didnt show up on stress test. That was on a Tuesday I went home on Wednesday chest pain was back on Thursday the following Monday I was back at his office with same symptoms. More test and xrays, CT scans blood work nothing. I have had two endoscopy's, esophagus test, not counting all the testing at Mayo clinic. My symptoms will not go away. You can count on your one hand how many days I have had a good day.

Aug 31, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hello John I have yet to hear anybody with the same symptoms I have with PN. I have heart attack like symptoms and no body can explain it or find the cause. It has taken a toll on me mentally and physically. I have tried a dozen different meds but nothing has helped except the side effects has caused a cataract in my eye. I have even tried a spine stimulator with no relief. Just the smallest activity causes the symptoms to flare up. This has been going on for two yrs now.. My cardiologist says I am unique because standard testing does not work on me, even my family Dr is at a loss I have seen neurologist at Mayo and here as well. Every Dr is puzzled.

Oct 28, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hello Jim All this is confusing to me as well. My neuropathy has been different. Mine is not bothering my feet much, no tingling or burning. Mine is in my upper body. From the research I have found is that the neuropathy progress’s but I don’t know what rate. The Dr told me to take B12 2000 mg a day and told me is very important to keep my appointments Nov 13th. I am seeing a pain Dr, and Neurologist.

Oct 28, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hello John, My symptoms started several yrs ago. They came to surface together July of last year. The Dr told to me to take B12. I am taking 2000 mg a day. They also to me its very important to keep my appointments Nov 13. I am seeing a pain Dr and Neurologist. I have turned down pain meds I don’t want to go that route unless I have too.

Oct 27, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hello John, My right hand and arm would tingle and go numb also my shoulder was hurting, that was several years ago, the Drs couldn’t find anything. It has progressed now both hands have tingling along with my groin, I get some tingling in my upper legs. The neuropathy is affecting my heart, blood pressure, feeling to touch, hearing, eyes, bladder, bowels. I can not stand anything on my chest it feels like I am being choked, that is what confuses the Drs. The left side of my body has a different pin pick feeling than the right side. The pressure on my chest gets worse with activity to a point that I feel I am choking. It has been a struggle to get out and stay busy.

Oct 27, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hello old Karl, I have had many test but they showed normal. I found my answer at Mayo in Florida. After they did several test and found small fiber peripheral neuropathy, from what I can find on it, it is a rare condition, I was told on 10/12/2017. The nerves that have damage control the autonomic area.