Badges (2)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (7)

Thu, Mar 21 6:58pm · I am desperate to find a dr who treats arachnoiditis. in Spine Health

@ @christinasuit My paperwork ALL said arachnoiditis and the disability judge said he didn't believe that is what my problem was. Dr ForestTennant will help read MRI so you can show the findings to your GP which should helpifyou do have arach

Thu, Mar 21 6:52pm · I am desperate to find a dr who treats arachnoiditis. in Spine Health

Hi, Nice to meet you. There are doctors out there. May I suggest checking out these support groups on facebook. Arachnoiditis, arachnoiditis everyday and arachnoiditis together we fight. They have been quite helpful to me. Sorry we had to meet by having this in common

Mar 8, 2018 · I am desperate to find a dr who treats arachnoiditis. in Spine Health

There are some great Arachnoiditis support groups on facebook. I belong to 3 of them and they are all great. Just put "arachnoiditis" in the fb people search bar

Mar 8, 2018 · I am desperate to find a dr who treats arachnoiditis. in Spine Health

c-edward; have you been diagnosed? If not, there is maybe a bit of hope to get diagnosed but your regular doc probably wont know enough to diagnose you. I had a doc diagnose me in 2003 but his clinic was closed so I had to start over…then it took me another 19 years for diagnosis. My doc can read your mri's

Mar 8, 2018 · I am desperate to find a dr who treats arachnoiditis. in Spine Health

Do you also have positive ana and elevated crp? Do you take any lupus meds?

Mar 8, 2018 · I am desperate to find a dr who treats arachnoiditis. in Spine Health

There aren't many doctors that treat arach BUT There is a doctor in California that treats it. He is retirement age and is booked full BUT he has a AA handbook that has the treatment protocol in it that he made specifically for us to give our doctors for them to use. It takes some talking but usually if you sign a release to keep the doc covered in case of your death-so the family wont sue him for using drugs that help but are off label. Look up http://www.painandhormones.com for the protocol. I am on about half of them and only take percocet so it is working

Nov 12, 2017 · I am desperate to find a dr who treats arachnoiditis. in Spine Health

please look up information from Dr Forest Tennant. Many of your issues are probably caused by the arachnoiditis, His information has helped me greatly to find relief on my own( Kratom, DXM, oxytocin etc) because the doctors all blow me off and even pain management will not prescribe anything except lyrica and for a year after diagnosis still tried to give me more epidurals which is the worst thing you can do with arachnoiditis