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Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

I have a friend that it did not work on and I am on a facebook arachnoiditis page and from what I see, for those that it DOES work on it is only their leg pain. I read too much negative stuff so I am to scared to get one afraid it will be worse. I would take the pills if they offered them.

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

I found kratom works well. Look up dr forest tennant . He has good pain relief info on ARACHNOIDITISHOPE.COM I tried acetazalomide and it helps with the pressure of the spinal fluid that is blocked by arach. It helps me more than pain pills.

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

i have had aa for 21 years. I finally found a doc that would read tennants info in 2018 BUT he still wont prescribe the necessary meds, much less pain meds. govt scaring all the doctors into letting us die.

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

Hi, Nice to meet you. There are doctors out there. May I suggest checking out these support groups on facebook. Arachnoiditis, arachnoiditis everyday and arachnoiditis together we fight. They have been quite helpful to me. Sorry we had to meet by having this in common

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

@ @christinasuit My paperwork ALL said arachnoiditis and the disability judge said he didn't believe that is what my problem was. Dr ForestTennant will help read MRI so you can show the findings to your GP which should helpifyou do have arach

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

please look up information from Dr Forest Tennant. Many of your issues are probably caused by the arachnoiditis, His information has helped me greatly to find relief on my own( Kratom, DXM, oxytocin etc) because the doctors all blow me off and even pain management will not prescribe anything except lyrica and for a year after diagnosis still tried to give me more epidurals which is the worst thing you can do with arachnoiditis

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

There aren't many doctors that treat arach BUT There is a doctor in California that treats it. He is retirement age and is booked full BUT he has a AA handbook that has the treatment protocol in it that he made specifically for us to give our doctors for them to use. It takes some talking but usually if you sign a release to keep the doc covered in case of your death-so the family wont sue him for using drugs that help but are off label. Look up http://www.painandhormones.com for the protocol. I am on about half of them and only take percocet so it is working

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

Do you also have positive ana and elevated crp? Do you take any lupus meds?