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Posts (71)

5 days ago · burning mouth syndrome very severe in Just Want to Talk

@destinnana As you say, dental work is definitely known to be a cause of BMS. But all medical opinion seems to say that the cause is multifactorial. I think stress does increase the symptoms, as it probably does for any other condition.

Dec 24, 2018 · Erosive oral lichen planus in Autoimmune Diseases

@dreamer60 This is an interesting story. Treatment of LP is 99% the steroid, rather than all the other things you mention. The problem with steroids is that they can cause serious side effects, some down the road. LP can also progress to burning mouth syndrome (BMS), which is also something that the medical profession seems to know nothing about and declines to bother with. Top specialists in oral pathology in NYC tell me there is nothing you can do. Both these conditions are in fact wide spread and doctors just seem to ignore them.

Dec 3, 2018 · burning mouth syndrome very severe in Just Want to Talk

@mamajomclane Thanks for info. With me BMS definitely has nothing to do with acid reflux, which I have never experienced in my life. BMS seems to have many possible causes, probably several together, but no cure. Dental work is probably one likely contributor. Docs don't know what to do with it.

Dec 1, 2018 · burning mouth syndrome very severe in Just Want to Talk

@mamajomclane Yes, dental work is known to be involved in causing BMS. Articles about this problem always say it is multifactorial. That makes it hard to fix. When you get the name of the topical toothpaste with amitriptyline, please share it. No docs that I have consulted have any useful answer.

Nov 30, 2018 · burning mouth syndrome very severe in Just Want to Talk

@destinnana The med community seems to say that BMS is common in older women who are depressed, anxious, etc. I notice that it can be better or worse (mostly worse), but no known triggers. Except the long list of all the "wrong" foods.

Nov 30, 2018 · burning mouth syndrome very severe in Just Want to Talk

@lynschupbach For BMS I have been through a series of drug suggestions, none worked. By now BMS has affected my entire mouth (thickened tongue, lips) as well as continuous burning sensation in various spots. These conditions have also affected my speech; I now have a lisp, for example. I have changed my diet drastically, including elimination of most of my favorite foods. Someone told me that it was caused by eating too many peppers (not hot, just sweet red peppers). It seems that this condition is very common, but most docs have never heard of it. Very discouraging to think this is IT for the rest of my life.

Nov 26, 2018 · burning mouth syndrome very severe in Just Want to Talk

@kathylo Thanks for this info. In my case I have no other diseases. This came on for no discernible reason or medical cause.

Nov 25, 2018 · burning mouth syndrome very severe in Just Want to Talk

@sheetrock0131 YES, others can feel your pain. This is an awful, life-destroying condition. It is also true that doctors have no idea what to do about it. The highest level specialist in "oral pathology" in New York City told me nothing can be done. Biggest NYC hospitals couldn't refer me to anyone.