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Fri, Mar 8 6:47am · Burning Mouth Syndrome in Just Want to Talk

@destinnana Gabapentin- a high-level oral med specialist recently told me you have to take huge amounts of Gabapentin to get any pain relief; she said "if you take that much you will be in a fog."

Mon, Feb 18 6:37am · Erosive oral lichen planus in Autoimmune Diseases

@fancyrph I went to an ENT, he recognized OLP (under tongue), treated with a couple of (light dose) steroid shots, and it went away.
Can you explain what a "pulse dose" is?

Sun, Feb 17 6:12pm · Erosive oral lichen planus in Autoimmune Diseases

@ grammlyn OLP is treated with steroids, not always huge amounts. The right doc might be ENT or even dermatology. Try calling a medical school and get reference.

Fri, Feb 15 3:21pm · burning mouth syndrome very severe in Just Want to Talk

@ ristu I have BMS for 3-4 years, with none of those conditions, and like you, nothing works. The most significant fact here I think is that the medical profession has no idea what causes it. Thanks for info.

Fri, Feb 15 10:45am · burning mouth syndrome very severe in Just Want to Talk

@babsguelph Imagine– pot could be the solution to BMS. It's worth a try, since BMS means endless torture with no medicinal solution otherwise. Thank you!

Tue, Feb 12 6:09pm · Erosive oral lichen planus in Autoimmune Diseases

@march13 Please tell us about the right treatments (and doctors, if you can). Glad someone has gotten rid of this evil condition (I mean "Satanic").

Tue, Feb 12 6:14am · Erosive oral lichen planus in Autoimmune Diseases

@kymillie If supplementing with calcium were the solution to OLP, that would be a miracle. I've had numerous suggestions, none of which worked.

Mon, Feb 11 6:39am · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

@cpaulestep Dear Paul, You don't say anything about the background of this definitely unexpected cancer. Did they ever give you any ideas about why this happened? With prayers, J