@meadowhouse Thank you. My question is: since BMS is known to be a "neuropathy," has anyone ever asked a neurologist for help? The Academy of Neurology posts dozens of articles about BMS, but I do not see any that offers a cure.
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Burning mouth syndrome is a painful affliction, apparently with no treatment and certainly no cure. Since it is defined as a neuropathy, has anyone ever asked a neurologist about it? I have had it for 4-5 years: restricts eating, deformed my mouth, changed my life and nlo hope of ever improving.
@andavis1189 Not knowing another person with a particular medical condition seems very hard to take. I feel the same way. In my case it's "burning mouth syndrome" (or something like that). It's daily torture, no real treatment, numerous docs know nothing about it, and those that do offer no cure and barely any relief. This topic comes up on Mayo discussion line, but I have never met or heard personally about anyone with it.
Sun, Sep 1 1:26pm · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer: Managing Symptoms
Thu, Aug 29 7:43am · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer: Managing Symptoms
@merpreb I am sure all the advice to be positive is correct; but it doesn't always work. I feel I am doing all the right things–that is, I have endless work to do, much of it is my professional work as an academic. Add to that eating right, exercising, and filling the day with activities and people. But the general sadness and gloom never leaves.
Thu, Aug 29 5:49am · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer: Managing Symptoms
#janlandenz Yes- the general consensus is that a positive attitude is best. Still, I wonder if it is an honest way to go. Stories like this make my sad and depressed even if I am OK myself. Indeed– what are we to think when terrible things happen to good people? Great books have been written about this subject but offer little solution.