@mram7 Welcome to the line. Im also 38, advanced dilated cardiomyopathy. Diagnosed in 2013. I never would have thought i would become a heart "expert". YOU are in charge of YOUR healthcare. I have a binder i take to the er with copies of echo cardiogram, er visits, med list. Dr. Seem to treat you better. If your on warfrin check into getting an inr test kit to do labs at home.im also on spironalactone for water weight helps the shortness of breath. Its important to try and always be calm. Metoprolol, pravastatin, digoxen. And ive been taking entresto the last 6 months i think it is really helping. Right now im currently, slowly, seeking heart transplant, with the back up of a heart pump if i need it. Keep log of blood pressure, pulse, weight, oxygen levels. I get tired all the time, the days i try to push through it i usually end up getting angry at something stupid.
Stay connected strengthen your suport net and stay calm. You are NOT alone.