Badges ()

About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts ()

Oct 31, 2017 · Liver hemangioma/liver resection in Digestive Health

Also, I wanted to say I’m sorry to hear you had a metastatic melanoma. I’m glad things are stable and I hope you continue to do well. I will request the tests as you mentioned. I’m happy I finally got referred to a team that specializes in liver matters far more in depth than my doctors here in Fargo.

Oct 31, 2017 · Liver hemangioma/liver resection in Digestive Health

No I have never had a liver biopsy done. We have only done CT scans since it was found in 2010. They did do blood work once and it came back all normal. I have not ever had an MRI done either. All CT scans have said it was a hemangioma. I go to Mayo for my appointment next Wednesday so I guess we will see what all tests they want to run. My doctor here just referred me to them since it has grown again and he says I need a liver resection and Mayo is the nearest surgeon. I’m 6 hours away in Fargo, ND. They have told me to plan for 5 to 7 days of testing but I’m not sure how long it will really take. This is my first experience at Mayo.

Oct 27, 2017 · Liver hemangioma/liver resection in Digestive Health

We actually found my liver hemangioma when I thought I was having a heart attack. Turns out it was a gall bladder attack so when I was 17 weeks pregnant I had my gall bladder removed. I had my first CT scan on my liver in the Fall of 2010 after my pregnancy was done. At the time my hemangioma was already considered giant and was about 6cm if I remember right. I have had annual CT scans since 2010. My most recent one showed that it was now almost 12cm so grapefruit size. My doctor here referred me to Mayo since mine keeps growing as he said I need to look into liver resection and Mayo was the closest surgeon for liver hemangiomas. My doctor here isn’t sure why mine keeps growing. Since we found it in 2010 I have not been on birth control or been pregnant again and they believe hormones from both of those cause it to grow. I guess I’m special as mine is still growing! I wouldn’t say its so much painful but I guess I would describe it as a more pressure type pain on my upper right side where your liver is. I’m barely five feet tall so I think there is no room for a grapefruit size mass in me! I know my reason for visiting Mayo could be so much worse but from my internet searching it looks like liver resection is a pretty high level surgery since its a major organ and a long recovery. So I’m a bit nervous about having another surgery, especially a major one. So any input from someone who has been through this would be great.

Oct 26, 2017 · Liver hemangioma/liver resection in Digestive Health

I have been referred to mayo for a giant liver hemangioma to discuss liver resection surgery. Has anyone had a liver resection? Just curious how the Mayo process goes and the surgery.

Oct 26, 2017 · [TIP] How to Use Connect: Step-by-step Instructions in Just Want to Talk

Is there a group for liver hemangioma or liver resection. That is why I’m coming to Mayo in a couple weeks and would like to connect with people who have had the surgery.