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Posts (24)

Nov 1, 2018 · Watch and wait is over in Brain Tumor

Thanks for thinking of me. I flew down and went to Mayo Phoenix this week. After my 4th MRI my neurosurgeon here said my tumor had grown in my last two MRI's as posted in my earlier comments. The two Mayo Drs I saw both agree the tumor has NOT grown and the superior sagittal sinus vein causing concern has actually already become occluded and my body has created new veins to take care of the blood flow that would have drained through the vein below the occlusion. The body is a wonderful thing! No surgery needed at this time. We will watch it with MRI's annually unless symptoms increase. So back to watch and wait, but I feel ok with it now.

Oct 25, 2018 · Watch and wait is over in Brain Tumor

Thank you. We are flying into Mesa Gateway late Sunday (10:56). We will need ground transportation to the Marriott Residence at Mayo but no shuttles run that late. Other than cabs, any suggestions on rides from airport to hotel?

Oct 22, 2018 · Watch and wait is over in Brain Tumor

Thanks. Good idea. I will check it out. Just want to it to be very near Mayo

Oct 21, 2018 · Watch and wait is over in Brain Tumor

@IndianaScott Thank you so much for sharing your experience. Right now I am aware of only two appointments. I would rather they do the surgery right away for several reasons. If it's growing I want it out! My doctor explained the problems with waiting, even though during my watch and wait phase I was told the location of the tumor complicates surgery. I have been able to hold it together, thankfully due to my faith. I think the fear of the unknown is bothering me more than the idea of the procedure itself. Of course, though money isn't the most important thing, it is very expensive for travel out of our very remote location, and lodging and food for family when we get there is high too. Colleen recommended I call Mayo tomorrow to get some of my specific questions answered, but I don't know who to ask for. Do you know? Thank you Scott

Oct 21, 2018 · Watch and wait is over in Brain Tumor

Who do I ask for to get the details specific to me? I searched the website and it doesn't say.

Oct 19, 2018 · Watch and wait is over in Brain Tumor

@colleenyoung Ok- I have two appointments on 10/29 at the Phoenix Mayo. We are flying down on a late flight the night before and my first appointment is at 8:00 am. I was wondering if someone is going to contact me and tell me what to expect. My doctor sent my MRI's and doctor notes. He is recommending surgery to remove my tumor because it is growing. I made flight plans and hotel room reservations for my husband that allowed me time to remain in Phoenix for the surgery and wait a week to fly (which is what my doctor said is protocol following brain surgery). Do the Mayo doctors review my records and tests before I get there and then evaluate me and decide if they agree with my neurosurgeon? If they do, is it possible I can stay and have it done right away? I hate the idea of having to come home and wait. Or is it most common that you do have to make two trips? Even with brain tumors? Trying to remain calm in this state of the unknown.

Oct 15, 2018 · Watch and wait is over in Brain Tumor

Thank you so much for your reply. So it sounds like it make take two trips down there. One to see the doctors and then again to do the surgery. I just need to get through to talk to someone. Meanwhile I left a message for my local neurosurgeon to send a referral down to them at Mayo. Hope you continue to do well.