About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (6)

Oct 4, 2017 · MAI bronchiactasis in MAC & Bronchiectasis

body {height: 100%; color:#000000; font-size:12pt; font-family:Times New Roman;}
 Thanks
 

Sep 27, 2017 · MAI bronchiactasis in MAC & Bronchiectasis

Dear Windwalker, thank you for your caring thoughts. Yes, I am working with a respected pulmanologist, but he is not doing anything about my MAI. His plan is to watch and wait. But what am I waiting for-the MAI to do more damage? I never had symptoms that would indicate the presence of the MAI in the first place, just lung damage revealed by a cat scan. So am I waiting for more damage that is only revealed by a cat scan. Can MAI be eradicated? If that is possible, why not just bite the bullet and get rid of it once and for all and resume my life with somewhat impaired lungs. I need to know a lot more about this thing that has entered my body and I’m not getting answers. Can I ever be cured? Another question. Does what is left of your lung capacity respond to conditioning excercise. Can you “get Into shape” so to,speak?

Sep 27, 2017 · MAI bronchiactasis in MAC & Bronchiectasis

Dear Windwalker,
Thank you so much for your thoughtful suggestions. My name is Jane.

Sep 27, 2017 · MAI bronchiactasis in MAC & Bronchiectasis

hi tdrell, I am not familiar with the NTM acronym, please explain. I live in Seattle WA. My doctor is a phd/md who specializes in lung deseases. I have had X-rays, Ct, na breathing test and sputum analysis. Current plan is to watch and wait. This is what is not clear to me. My doctor told me that the deterioration of my bronchial tubes was due to MAI, but the flare ups are caused by a secondary bacterium that enters my lungs as a fortuitous event caused by a build up of mucus. That can be successfully dealt with by a number of antibiotics. Now my question is: what is the purpose of the triple antibiotic procedure. I assume it is to attack the MAI. That leads to another question: what about the MAI? Is it continuing to destroy my bronchial tube as we speak. How do I know? What are the symptoms? How does one know? Do I have to have another Cat scan to know? This is all very confusing to me. I hope someone can explain this whole process to me in very simple terms. What about the MAI? What is it doing. Does it go into remission, and how would I know. Does the MAI have symptoms other than lung damage. All very confusing and I’m not well enough informed to even ask intelligent questions.
Thank you all for you kind thoughts and offers of support. It means a lot to me,
Best regards,
Janeb

Sep 27, 2017 · MAI bronchiactasis in MAC & Bronchiectasis

Thank you, Janeb

Sep 23, 2017 · MAI bronchiactasis in MAC & Bronchiectasis

Just diagnosed, with no treatment recommended at this time. I am an 85 year old woman in otherwise good health. Any suggestion on how I should move forward with my life? What things to avoid? How to maintain my good health? What are my reasonable expectation of recovery?