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Posts (11)

Dec 19, 2019 · How to stay healthy with Bronchiectasis in MAC & Bronchiectasis

Dear Kate,
Thank you so much for your thoughtful reply.
Merry a Christmas
Jane

Dec 17, 2019 · How to stay healthy with Bronchiectasis in MAC & Bronchiectasis

My coughing increases, I notice an increase in phlegm (I use a flutter valve nightly) and I experience a general loss of energy and shortness of breath.

Dec 17, 2019 · How to stay healthy with Bronchiectasis in MAC & Bronchiectasis

Dear Friends,
I was diagnosed with the big B four years ago. I have been very fortunate and have what my Pulmanologis calls “flare ups” only occasionally…a week of antibotics puts things back in order. I am not sure what brings the flare ups on. Our home is hepa filtered throughout and when the forest fires come in the late summer I stay inside. I’m wondering whether you all use care to avoid certain environments or circumstances. Can you give me some advise regarding what to avoid? Thank you all in advance for any thoughtful advise.
Jane

Oct 4, 2017 · MAI bronchiactasis in MAC & Bronchiectasis

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 Thanks
 

Sep 27, 2017 · MAI bronchiactasis in MAC & Bronchiectasis

Dear Windwalker, thank you for your caring thoughts. Yes, I am working with a respected pulmanologist, but he is not doing anything about my MAI. His plan is to watch and wait. But what am I waiting for-the MAI to do more damage? I never had symptoms that would indicate the presence of the MAI in the first place, just lung damage revealed by a cat scan. So am I waiting for more damage that is only revealed by a cat scan. Can MAI be eradicated? If that is possible, why not just bite the bullet and get rid of it once and for all and resume my life with somewhat impaired lungs. I need to know a lot more about this thing that has entered my body and I’m not getting answers. Can I ever be cured? Another question. Does what is left of your lung capacity respond to conditioning excercise. Can you “get Into shape” so to,speak?

Sep 27, 2017 · MAI bronchiactasis in MAC & Bronchiectasis

Dear Windwalker,
Thank you so much for your thoughtful suggestions. My name is Jane.