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Sat, Oct 19 7:19am · Loss and Grief: How are you doing? in Loss & Grief

Went for testing yesterday (labs, biopsy & additional ct of abdomen & pelvis; the Ct's of the 2nd for Neck and chest qualified for the study) and starts this coming Thursday and then back on this Friday by calendar it will end the week after christmas – has no appointments that week so hopefully the large part of travel will be over with before winter hits – maybe of course the saying is this is "Indiana just wait…". The support is him – the sisters really do not care nor the 2 brother-in-laws which is sad at least the one brother-in-law did come over and check the old vehicle for us. When I told the one sister the other night she showed no emotion/expression at all did not ask any questions (her daughters facial expressions changed) she did not even tell her husband the one who has been checking the van over! I called as him if he had any more of the plastic pallets on Thursday and have yet to hear back from him i will not call again and ask…. I have been doing the clean-up all by myself with a little help from the one with cancer… this all is for him his care etc. Like said will try to stick it out here got straw for around the bottom of the trailer got a full plus cord of wood and will get another and get stocked up so we don't have to be out and wait for small loads to come. Its all chopped split to size I can handle.

Fri, Oct 18 9:09pm · About ready to scream, been bad month in Lung Cancer

Update Synopsis as Not sure what posted this summer… friends neck lymph node started growing in Jan. by March really bothering him tried a clinical study of chemo for a few weeks but was still growing by late April when decided to do radiation & genomic testing 10 radiation treatments in May and nothing came of the genomic testing for markers what ever was off the Keytruda during radiation and then went back on it Oct 2nd CT scans brought bad news on the 7th that the lymph node in armpit started growing and one in the chest area these were original old ones – the neck lymph node remained same as the July Ct scans and under control the main tumor has not changed thus far since the end of the 1st clinical study in April 2018 when he began the Keytruda only all other lymph nodes remain stable and unchanged… on the 7th the Keytruda could not be given because of the CT results was told a harsh treatment & possibly keytruda too or that a clinical study was available ( Ant-IDO-1 Agent maybe combined with Anti-PDL-1) it’s a Pahse 1a/1b and last resort would be radiation… Chose the clinical study Eli Lilly it is 10 weeks with on Thursdays and then there are 3 times we have to go back on Friday for blood testing ekg and the 3rd Friday a biopsy… signed papers on the 7th today (18th) we went back for the labs tests, biopsy and ct scan of the abdomen and pelvis … .

Thursday 24th we start in oral dosing with infusion, 8 hour post blood draw and go back of Friday 25th for blood draw oral dosing and ekg then next to weeks only the labs and oral …..

Been while since posted… summer went way to fast… been cleaning up 5.3 acres a long .ways to go… things finally settled the daughter & husband got her 5A but had to get a variance so could keep farm land frontage nothing ever has been simple bu t went through without question… sale of 40A cent through on Sep 11 and went got new vehicle 2019 GMC Sierra 1500 Elevation series a 4by4 did not have it but 4 days someone keyed/scratched the drivers side from drivers door to taillight .had to totally repaint that side… thus can not be Ziebarted till late December. its paid for in full going to stick it out here another winter if can and put money into restoring my house… me i am hanging in sometimes by a thread i think turned another year older on Sunday trucker friend came in helped us get dyer out of garage/barn not attached to trailer into laundry/furnace room so will provide extra heat when ran and another problem solved that's been on going for 3 years but his family would not help solve… God will provide and guide

Fri, Oct 18 8:24pm · Loss and Grief: How are you doing? in Loss & Grief

Been while since posted… summer went way to fast… been cleaning up 5.3 acres a long ways to go… things finally settled the daughter & husband got her 5A but had to get a variance so could keep farm land frontage nothing ever has been simple bu t went through without question… sale of 40A cent through on Sep 11 and went got new vehicle 2019 GMC Sierra 1500 Elevation series a 4by4 did not have it but 4 days someone keyed/scratched the drivers side from drivers door to taillight.had to totally repaint that side… thus can not be Ziebarted till late December..its paid for in full goign to stick it out here another winter if can and put money into restoring my house friend is having his ups downs with his lung cancer was doing fine but neck lymph node started growing and had to have radiation in May did fine for while now another 2 old lymph nodes elsewhere growing so into another clinical study…more in lung cancer on that…. me i am hanging in sometimes by a thread i think turned another year older on Sunday trucker friend came in helped us get dyer out of garage/barn not attached to trailer into laundry/furnace room so will provide extra heat when ran and another problem solved that's been on going for 3 years but his family would not help solve…

Sun, Sep 15 11:41am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

@bluelagoon I have never minded or regretted the distant of travel it involves… I fact when ct's are invovled for all of 5-10 minutes we travel to IU Medical/Simon Cancer center for them they know what they want – they are there for the next visit which is 2-3 days later and there is no hassle of getting them sent to them. It beats the care his father received to Me QUALITY of care and COMMUNICATION are of the utmost I do not care how far would have to travel to get it… I know his father's dr/ (hematologist/oncologist) could not understand why he was not coming to his practice but it was because of him – his lack of communication; take this medication because I tell you too and side effects be dam and not listening and talking in analogies (which do not cut the mustard)

Sun, Sep 15 8:40am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Yes he really has never lost his appetite; at times foods have not tasted all that great but he has pretty well maintained his wight over the almost last 3 years – Oct 25 i think is when was diagnosed so will be starting the 3rd years soon

Sun, Sep 15 8:23am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

I am tired from all the clean up work… I had just came in from being in front yard all daydid nto catch the typo and internet has been down since Thursday
till late sometime yesterday afternoon and its been popping on/of and down several times completely since June phone/internet service has been absolutely the pits from centurylink this summer for some reason. Because of the neck lymph node he was taken off of the clinical studies but his Dr. is continuing with the immunology KEYTRUDA® (pembrolizumab) treatments… there may be other clinical studies down the line… he is staying with IU Medical/Simon Cancer center

Sat, Sep 14 10:32pm · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Sorry I have not updated but fired since radiation has been "stable" with the radiation the neck lymph node as looked and felt like its reduced in size. The last CT was in July and since no longer in the clinical study, no chemo, only immunology KEYTRUDA® (pembrolizumab) every three weeks which he is tolerating very well with no side effects. A CT is scheduled for Oct 2nd.

Me been busy cleaning up 5.3 acres been working every day itrs not raining 6-8+ hours a day made small dent… plus i have tangoed with the dumpster but the dumpster won out. slamming my forehead and nose into it; landing hard on the ground with my right knee… I dusted my self oof walked into house rested for 3 hours and went back to work outside the same day… a couple of scrapes on forehead, nose, did not break of scratch my glasses… did have a side ache for a week or so must of twisted; have a hard head Making head way… A trucker friend came in Wednesday and we have about conquered the front yard weed wacker the yard down with a weed eater with metal blade on it and sawing off seedlings that have sprouted since probably about Nov 2016 when his father no longer mowed the yard and it was the sons responsibility (he done paths only the width of the riding lawn mower) he never even burned the trash he took out to the north only expanded the it from the trash hole to above ground for 5 feet plus…. have the second dumpster about full and waiting for the 3rd 🙁

Things became final on Wednesday the 11th.. waiting for the bank to release the funds only released a mere repentance seven tho it was an escrow account from the title/abstract company… 20th is the release date and soon after I will have a new vehicle factory warrantied… and hen will work on housing… yet to hear from my account 🙁 SO things are looking up if i can survive the clean-up….

Sat, Jul 6 6:27pm · About ready to scream, been bad month in Lung Cancer

Thanks life is a bowl of cherries…. f you do not buckle under you do survive it could be worse Alive and still kicking 🙂