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Posts (4)

Dec 8, 2017 · Collagenous Gastritis in Digestive Health

Hi, I’m so sorry for what you are going through with your daughter. I was diagnosed as an adult, and I don’t know if there are significant differences between adult and juvenile CG. You may want to look into finding a doctor that has experience with CG in adolescents since I believe they are out there -I have heard CG is more common in younger people. That being said, I also have tested negative for all autoimmune diseases including all those you listed. While I did have a rough time several years ago leading to my diagnosis, including some of your daughter’s symptoms, hospitalizations and blood transfusions, I’ve been in excellent health for many years and I live a completely normal life raising kids, working, and feeling totally fine the vast majority of the time. I know this does vary of course by individual, but I’ve found most helpful: a clean diet (unprocessed, lots of fruit/vegetables/whole grains) and trying to reduce stress. I occasionally take Protonix to control symptoms if they flare up. I haven’t needed any follow up treatment for many years (I visit my gastroenterologist yearly just to check in) and I’ve never needed a colonoscopy. Obviously this doesn’t mean everyone has the same experience, but I want to give you hope that the diagnosis doesn’t mean she’ll always have the symptoms she is now experiencing. As a mom myself, my heart is with you.

Sep 21, 2017 · Collagenous Gastritis in Digestive Health

I forgot to answer your question about changes I’ve made other than diet. I have always exercised fairly consistently, so i can’t compare sedentary vs active lifestyle. I have found stress often causes symptoms, so having less stress in my life over the last couple of years may have helped with my symptoms as the episodes of vomiting blood and intense pain have not occurred in the last two years. Before i started with the diet changes i found taking the protonix every single day was imperative, i would notice symptoms almost immediately after eating if i skipped a dose. However, I’ve been almost entirely off meds for the last few months with the diet changes.

Sep 21, 2017 · Collagenous Gastritis in Digestive Health

I’ve switched from a relatively healthy but regular American diet to one of mostly unprocessed foods focused on vegetables and fruit and avoiding white flour products, fried food and packaged snacks/candy. Recently i added in a morning smoothie which has enabled me to go off of my daily does of proxonix. I believe the key ingredients making the difference are fresh ginger, turmeric and cinnamon. I also add frozen banana, flax seed meal, organic almond milk, spinach and other frozen fruit such as cherries. May not sound appealing but it’s quite good. The addition of any red fruit does give it a gross color, but since it works for me i don’t mind. Happy to provide any additional info that would be helpful, I’m grateful to have found people who have even heard of this diagnosis.

Sep 19, 2017 · Collagenous Gastritis in Digestive Health

Hi, i just saw this post, and i also have collageneous gastritis. Was diagnosed about 3 years ago after a second bout of vomiting blood, the last ultimately resulting in blood transfusions after complications from an endoscopy. At least at this
point I’m fortunate in that i feel well most of the time. I’ve found that eating a very
“clean” unprocessed diet helps tremendously, alcohol seems to make it worse. I take proxtonix, often every day, but when I’m eating very well i often don’t need meds. If you’d like to speak further please message me. I’ve never met anyone else with this diagnosis and I’m glad to hear there are doctors known to work with this diagnosis since my GI hasn’t seen it before. Thanks for posting.