Hi, I’m so sorry for what you are going through with your daughter. I was diagnosed as an adult, and I don’t know if there are significant differences between adult and juvenile CG. You may want to look into finding a doctor that has experience with CG in adolescents since I believe they are out there -I have heard CG is more common in younger people. That being said, I also have tested negative for all autoimmune diseases including all those you listed. While I did have a rough time several years ago leading to my diagnosis, including some of your daughter’s symptoms, hospitalizations and blood transfusions, I’ve been in excellent health for many years and I live a completely normal life raising kids, working, and feeling totally fine the vast majority of the time. I know this does vary of course by individual, but I’ve found most helpful: a clean diet (unprocessed, lots of fruit/vegetables/whole grains) and trying to reduce stress. I occasionally take Protonix to control symptoms if they flare up. I haven’t needed any follow up treatment for many years (I visit my gastroenterologist yearly just to check in) and I’ve never needed a colonoscopy. Obviously this doesn’t mean everyone has the same experience, but I want to give you hope that the diagnosis doesn’t mean she’ll always have the symptoms she is now experiencing. As a mom myself, my heart is with you.