Thanks all for the information and encouragement!
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I’m headed for my third Bronch on Thursday to try and figure out what to do next. Let’s see if I can make a long story short. I should mention I’m 53 and otherwise in very good health.
Twice I’ve gone in for Bronchoscopies (due to strange ongoing coughs) and discovered the H-flu bacteria. Cough goes away with the treatment for H-flu. The last bronch 18 months ago also revealed MAC. I took the 3 antibiotic cocktail for one year. We stopped at a year as it brought on a strong depression bordering on suicidal thoughts. However, now my follow up CT scans show increased opacifciation and larger nodules.
I continue to feel great- no cough, tiredness, minimal mucus (but I also have allergies), no fever. I’m trying to figure out what happens if we do nothing- the best answer I get from my pulmonologist is that, if it eventually has to be cut out, it will be a bigger problem. I also have an appt with infectious disease in a couple weeks to get their take on it.
My only treatment right now is my acupuncturist who’s treated me for several years for over all health. I guess my question is- if I tested positive for MAC but have no symptoms, do I have to be treated with medication?
Hi! Wish I’d found this forum when I started my MAC journey a year ago! I’ve just come off the meds- my Dr kept me at a year because I “developed” such a weird depression while on them- complete apathy. I’m so paranoid about it coming back as I can’t do this again (I think my husband would leave too!) I’ve been off meds now for 3weeks but in the last couple days, feel like a tightness in my chest. How quickly would this bounce back if we didn’t really get rid of it? Also is the sputum test a good test- my Dr diagnosed by bronoscopy and never mentioned the sputum test.