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Mon, Apr 20 3:11pm · COVID-19 and Transplant Patients in Transplants

@jolinda I couldn't agree with you more. I am very conflicted on this. I lost my job in 2009 when the company I worked for closed because of the recession. The stress of those times were extremely difficult. We have thankfully rebounded financially after several difficult years. (We certainly aren't wealthy by any means but our bills are paid and we have a small savings) I truly understand wanting the economy open. I also care for my father (heart transplant) and know the health risk for him and the need to protect his life (and others!) At this point, I continue to work, social distancing and avoid any extra unnecessary outings while still caring for my father. It is difficult to balance the economic and the physical health of the country. I am glad I do not have to make the decision on this. No matter what people are going to be upset.

Tue, Apr 14 2:49pm · COVID-19 and Transplant Patients in Transplants

@joyces His team consists of a cardiologist, surgeon, nurse practitioner, nurse transplant coordinator, social worker and psychologist that we have regular contact with (except surgeon). For having such a successful program and knowing the high depression rate post transplant it is sad they don't have a psychologist. They are so valuable! Transplant patients suffer with survivors guilt and I would imagine also ptsd. (??) Depression is also very common with open heart surgery. (my dad had a heart transplant). He often tells the team he is managing any depression and does not want to harm himself. I have to usually speak up and let them know he is not managing it. Watching tv (sad chick flicks at that!) all day and not moving is not managing it. When he wouldn't get off the couch I threatened to take the couch cushions! I also noticed especially within the first year of transplant it seemed he was treated as a star by everybody, medical professionals, friends, family, etc. Now he is back to being a regular person and I think he misses some of that attention. I hope your husband will realize depression is very normal and there is help. He could live a much happier healthier life.

Tue, Apr 14 11:48am · COVID-19 and Transplant Patients in Transplants

@joyces you sound incredibly healthy and active. Does your transplant team include a psychologist? My dad's team does, she specializes in transplant. We work closely with his entire transplant team and often speak with his coordinator and psychologist. They have both grown to know my father and I very well. I do have POA so I will often call and let them know if something is something is going on that needs to be addressed. His primary care doctor we only see once a year and has little input, he prefers to always consult back with the transplant team.

Tue, Apr 14 6:43am · COVID-19 and Transplant Patients in Transplants

Hello @joyces I have experienced similar depression with my father. He is 74 and received his heart transplant almost 3 years ago. His heart is doing great, however he isn't. His hand tremors had decreased with time. He had been in outpatient physical therapy for years trying to regain strength, muscle and balance. He has not been able to walk without a cane or now a walker since his transplant. He did not need assistance prior. He has recently been diagnosed with Parkinson's which only makes everything worse. Transplant often causes depression. My father sits in the chair in front of the living room window and watches world go by (on commercial breaks of course!) He does nothing for himself anymore. I thought it was all on him, being lazy, but the depression has an extreme hold on him, he just can't do anything. I have been working with his transplant psychologist to get him more help. I am also working to move him into an assisted living as it is not safe for him to stay home by himself any longer. He is too much of a fall risk. I fear we will find him severely injured one day. As a caregiver it is extremely frustrating to watch somebody who received a life saving gift seem to take it for granted, not be compliant and not willing to help themselves. We have had several disagreements on this. I have learned all I can do is try to get the mental health help he needs and then let go of what I can't make him do. (not sure if that is giving up, but I can't do anymore).

Nov 26, 2019 · Heart transplant recovery: What to expect? in Transplants

Hello @dennisprater my father is almost 2 1/2 years post transplant. He also lost a lot of muscle strength and endurance. He was an older patient when receiving his transplant, which may have slowed his recovery. He has been going to outpatient therapy for two years (off and on) two times a week trying to rebuild his strength to continue on to cardiac rehab. He has had several hospitalizations for pneumonia and an infection. The hospitalizations usually last at least a month and sometimes he will be released to inpatient pt. He declines rapidly (strength) when hospitalized and we end up starting the entire process over. He has been using a walker for two years now and transitioning to a cane with the help of pt. He has not been able to return to golf (hoping next year) or driving a car. The process has been slow. Several medication changes because of the intolerance, side effects, etc and still on steroids as his second immune suppressant. From the other heart transplant recipients I have met I have seen a vast difference in the recovery process for each. It is wonderful you are enjoying golf again. The process seems slow and frustrating, hang in there!


Hi, My father has not had any allergic reactions to his medications. As mentioned by @contentandwell, he did have diarrhea caused by his immunosuppressant.

Jul 19, 2018 · Just wondering...sometimes after the call, it doesn't work out? in Transplants

@rosemarya My dad had his one year heart birthday/anniversary on July 12th. We celebrated with a nice dinner and his buddies got him a birthday cake with one candle and sang "happy heart birthday". We also celebrated the all the health care professionals including everybody in CVICU with birthday cake. We do not know anything about the donor so just a special thank you to up above.

Jul 17, 2018 · Just wondering...sometimes after the call, it doesn't work out? in Transplants

@jodeej, that is great news! Wishing him a speedy recovery. Remember to take care of yourself as well.