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Nov 13, 2017 · Walking without a hip joint in Bones, Joints & Muscles

Thanks it’s been interesting to read these. My husband has osteosarcoma in his left hip and sacrum. It sounds like his surgery will be very similar. The surgeon said he can take out all the bone on the left side and do a resection without losing the leg . He did not mention putting in replacements so I don’t think that would be planned (only met once with him). After scans in Dec from chemo we are to reevaluate if it’s time for surgery. So should know more then. This has been helpful as realistically I wasn’t sure what the mobility and rehab really looked like.

Cyndi

Oct 26, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Hi,

He just got home today on his 52nd bday (4 days inpatient) from second chemo treatment of dosage of methotrexate. He endures the chemo well like last time with main effect fatigue (no nausea). This time they pump tons of fluid through and agressivly monitoring so he is up every hour which is hard with good sleep deprivation. He says hardest is being lonely in hospital as it’s an hour away. The first round I made it down after work and was shorter stay. Difficult when you work full time and have 2 kids to try to keep as normal a schedule as possible for them. After the first round he was doing great and all the sudden a week and half later his hip pain went from 3 to 10 and couldn’t stand. Some pain meds and 3-4 days and it was gone. The are not really sure why it seems. It was scary and I hadn’t read about that happening overnight. So far though things are going well. I think the next round they may let him wear a pump and do it at home. Mayo second opinion came and they are in agreement with current treatment plan.

I’ll check out the last link and happy to help anyone.

Sep 17, 2017 · Diagnosed with sarcoma? Let's share in Cancer

I’m so sorry your wife has to be in such great pain. I don’t understand that with all the advances with controlling pain why anyone should be walking around with severe dehabilating chronic pain. I hope that the pain pump works to take the pain away so she can get through her treatments and get cured. I can only imagine how helpless you feel when she’s in such pain. Sending you and her positive vibes and prayers to get through it all successfully.

Sep 17, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Thank you for the positive thoughts. Yes, I will do my best to update on treatment and progress.

Sep 17, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Thanks so much for info and also so glad you are doing great:) It’s always encouraging to hear the success stories. We asked the one oncologist we’ve seen about proton therapy and he said it might be possible but most success is with tumors that are very defined in shape. Curious if your cancer was on the iliac or hip bone or somewhere else? Thanks

Sep 15, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Hello my name is Cyndi,

My husband 51 has just been diagnosed with osteosarcoma. He had rectal cancer seven years ago and has been cancer free for six years. They are saying that the rare sarcoma is due to the radiation he received for the rectal cancer. Very rare side effect apparently but we always seem to fall into Murphy’s law, 🙁 It is on his left hip iliac and moving downward to the sacrum. He’s very active in excellent health and a small place in his hip started to have pain around the May time frame stopping him from playing tennis. He thought it was a disk issue and consulted several ortho and did two rounds of physical therapy with no real improvement. The ortho brushed it off and said he just has an 60 year old back in a 50 year old person but I’m glad my husband pushed him for more and finally got an MRI. Anyhow, we are just started on this journey (once again) and it sounds much worse as it’s so rare and my philosophy is get to the best medical team possible and is dealing and seeing the type of cancer frequently. That said we are fortunate somewhat to live in the Chicago suburbs but even in several highly respected research hospitals here these specialists are rare. It seems University of Chicago is the best and we are working on getting a consult there quickly. From my research, of course the big 3 Mayo, Anderson, and Ketterling sound like they have the most experience in seeing the rare “hip” bone cancer but because it’s so rare I was wondering if anyone had experience with this type of cancer and your experiences or thoughts on the three hospitals. We need to get this analysis and consults done quickly obviously to start treatment. My husband has the most positive attitude which is amazing . With the rectal cancer he endured the chemo, radiation, and two operations and kept on with his normal life and even improved his tennis game (he’s a high level player) including the 3 months he had an ostomey bag. I think he only missed 4 days of work which was when he was in the hospital. He treats it like a injury and knows he’s just got to do what the Dr. say and things will get better. He’s a fighter for sure. We have a 13 year old and 11 year old who we told yesterday and handled it well as we will let family know this weekend. Any advice or experience with this type cancer (good or bad) is appreciated. Thanks so much.

@wendy76 I hope you are doing well. Sounds like you should be 2 months in now. I know how you feel with the two young children. Sending positive thoughts and prayers.