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Sep 11, 2017 · Tumid Lupus in Autoimmune Diseases

I am on medication – Plaquenil, and every 6 months I have to have a special eye exam. I take some other meds so that I can be comfortable when trying to sleep. As far as heat, that is a tough one. Just a couple of days ago, I was seated outside in the shade, but the sun did come through the trees a couple of times, and that is all it took for me to be bedridden and in pain the following day. I try to not get overheated because that makes me have a bad reaction.

Sep 10, 2017 · Tumid Lupus in Autoimmune Diseases

I was diagnosed with Tumid Lupus in 2004. It is rare, and dermatologists and rheumatologists don’t always have answers. In addition, my skin is fair, and after many years of being of sun worship as a young girl, I have tons of skin cancer and basal cell scars. No sun for me. I was diagnosed with fibromyalgia in 2010. Joint and muscle pain, fatigue, etc. BUT, I look fine on the outside. Sometimes I think my husband and children forget that I am not feeling well on the inside. On the days I feel OK, I push myself to get as much done as possible, and then for the next couple of days, I pay the price. Same old story. I am forever thankful though that this lupus is not systemic.Just thought I’d share my 2 cents.