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Sep 3, 2017 · Need Awareness/ Prevention/ Research on Superior Mesenteric Artery Syndrome (SMAS) in Digestive Health

Oh my goodness thanks for the warm welcome!! Finding this group is such a godsend!!

Sep 3, 2017 · Need Awareness/ Prevention/ Research on Superior Mesenteric Artery Syndrome (SMAS) in Digestive Health

Aloha,
I was diagnosed with SMA Syndrome after years of misdiagnosis. I had surgery, a gastrojejunostomy, at the end of June, which is one of several surgical options. So pre-surgery, I would end up intheER from extreme pain after eating about once a month. Post surgery, I’ve been in the ER five times in eight weeks. I am absolutely miserable and can barely keep anything down, in level 10 pain almost all day every day, but somehow am healthy enough to not be admitted to the hospital or considered for a tube to help keep me fed, though I keep losing weight dangerously. It seems that no doctor in my state (Hawaii) even knows anything about gastroparesis, let alone SMA Syndrome,because their only solution is to tell me to go to the ER, and of course I end up looking like a “drug seeker”. I can’t even get any diet info here, pain management info, nothing.

Who has had surgery, and what kind was it? Also, I’m looking at the Phx Mayo clinic… anyone go there? Mahalo for your thoughts!