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Posts (37)

Mar 30, 2018 · Hypothyroidism and Thyroid Cancer in Thyroid Cancer

Very interesting! Thanks for sharing that information here!

Mar 30, 2018 · Adenoid Cystic Carcinoma: My primary care doctor won't treat me! in Head & Neck Cancer

Hi @hargon! I am feeling super frustrated FOR YOU! As someone that has battled oral cancer for 11 years, I have learned to always trust my gut and to advocate for myself. Your interaction with the PCP does not make sense to me, and it sounds like you are pretty frustrated too. In my 11 years of dealing with cancer, I have never had my PCP refuse to treat the rest of my body. Obviously, I have my ENT to focus on my head and neck, but I fully expect my PCP to have eyes over everything else. Would you consider discussing with your PCP? I know its frustrating to deal with doctors that refuse the care you need. I’ve been there! And finding a new PCP can be a huge hassle. I’m so sorry that you have to deal with this on top of everything else. Part of me wonders what your ENT would even say if you asked for a referral for a mammogram! Please advocate for yourself with as much strength as you can muster at this stressful time and keep us updated on what you learn!

Mar 27, 2018 · Hypothyroidism and Thyroid Cancer in Thyroid Cancer

Thanks for bringing this issue up again, @crummens . I’ve had hypothyroidism for eight years now ( family history of thyroid problems + radiation to my neck + pregnancy led my thyroid to give up!). I haven’t experienced the painful calves, but it seems like a terrible side effect. Have you spoken to your doctor about a correlation? I’m curious now myself!

Is there anything you can do for the pain? Is it worse at a certain time of day? Did it just start after the thyroidectomy?

Mar 21, 2018 · Welcome Our World as Head and Neck Cancer Patients in Head & Neck Cancer

I’ve had radiation 3 times and that was always the most difficult part. I had this end date in mind once radiation ended, but @alpaca is right- about a month to heal from each week of radiation. That first month or two after my course of radiation was always the most difficult during all treatment.

It seems like he is having trouble sleeping. Is it due to pain?

Feb 26, 2018 · World Head and Neck Cancer Day on July 27 in Head & Neck Cancer

I hadn’t heard of it before! Sounds like you have a great day planned. I can’t wait to hear how it goes!

Feb 22, 2018 · Keytruda in Head & Neck Cancer

I’m doing well, other than getting the nasty cold my son brought home from school! 🙁 I’m heading to Mayo next month to check in with my doctors. Hoping for good news! I’m also hoping to get my port out. I’ve had it for 3 years and figure it’s time. I’m afraid that I’m jinxing myself by getting it removed though!

Feb 22, 2018 · Melanoma of esophagus in Head & Neck Cancer

Has she tried Zofran and/or Compazine? Those are the go to meds that I have been on. Zofran melts in the mouth. I had compazine pills, but many meds come in liquid form. I would check with the doctor and pharmacist. Also, I’m not sure where you are located, but medical marijuana was a real lifesaver for me. It really helped with nausea and appetite. There is also a synthetic version that my doctor prescribed before medical marijuana was legal in my state. She has all my empathy though. I had c diff as I started chemo and it was so awful. I’m sorry that she has to deal with it right now. What has she tried already for nausea?