Sheila, I am a Mayo patient. I wish I could help you.
I have two questions for now:
how does weight-loss surgery cause a loss of sight?
A doctor (not at Mayo) once told me, "A patient has to be an advocate for their own health." I assume he meant that the patient has to tell each doctor exactly how the patient feels, and what the patient wants, because doctors can't guess what is on a patient's mind.
Also, doctors are hesitant to give out much pain medication, because they are either afraid that patients will become addicted to the pain medication, or because they mistakenly think the patient has nothing wrong with them, and instead is a drug addict.
So they often won't do it unless the patient makes sure that
everyone treating them knows EXACT:LY what they have been diagnosed with, reads their ENTIRE medical record, starts to understand just how RELENTLESS their pain is, and how THE PATIENT'S LIFE depends on getting relief from the pain.
You may have to write and call and send messages to your doctors over and over and make sure that everyone who sees you gets the message, that YOUR LIFE DEPENDS ON GETTING ENOUGH RELIEF.
Is your pain making you suicidal? If you are, tell them!