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Posts (11)

Oct 28, 2019 · Is anyone here addicted to the internet? in Addiction & Recovery

Nothing has changed. I'm trying to teach myself programming languages. People with Autism may become "addicted" to the internet for financial reasons. They know that if their money ever runs out, they are in BIG trouble unless they can create a job. Applying for jobs doesn't work very well for some people with Autism.

Oct 28, 2019 · Is anyone here addicted to the internet? in Addiction & Recovery

You turned down 2 jobs that you could have done from home? Can I ask what jobs they were? Thanks.

Oct 28, 2019 · If you've had IVIG's at Mayo, did your insurance pay for them? in Blood Cancers & Disorders

I’ve had at least 10 IVIG’s. To make a long story short, Mayo does not do a good job from an insurance standpoint regarding them. I don’t blame the Mayo physicians. I actually blame Mayo for not employing more people in Patient Billing. There’s not enough room here for me to explain what I’m referring to. Just know that if you’re going to get an IVIG at Mayo, you can expect to pay 50% to 100% of the thousands of dollars in charges. If you complain, Patient Account Services will just tell you that no patient is allowed to contact Mayo’s Patient Billing department, and that therefore, it’s the responsibility of the patient to file claims with the insurance carrier. That’s all I’m going to say on this matter. 🙂

Feb 4, 2019 · Best Ways to Prevent Nausea from Cancer Treatment in Cancer Education Center

The gold standard, in my opinion, for eliminating nausea is Zofran. I have probably felt nauseas 300 times, and all 300 times, Zofran quickly eliminated the nausea and I never threw up. I don't know if it's safe for women who are pregnant, but I'm a male. I can't say enough about Zofran, also known as Ondansetron. You put it on your tongue, and without drinking any fluid, just swallow it.

Feb 4, 2019 · Humor as a Coping Tool in Just Want to Talk

When I was in college, I thought that everything was funny, in an absurdist way. Now that I am 60, I don't find anything funny. At night, I tell my wife, "Let's watch a movie, but I only want to watch comedies." But there are actually not that many comedies produced by Hollywood. When I was younger, I did open-mic stand-up in restaurants and nightclubs. So, if Hollywood can't produce enough comedies that are truly funny, I'm going to have to create my own.
I'll put the first one on YouTube soon. I can't guarantee that it will make anyone, including myself, laugh. But it will be completely absurdist, that's for sure!

Feb 3, 2019 · Tinnitus and brain tumor in Brain Tumor

The types of chemotherapy I had are not supposed to cause Tinnitus. From what I've read, there are other types that do cause it, and it is because the chemo gets in to the bloodstream and then in to the fluid that the stereocilia in the cochlea are "bathed in." This permanently damages the stereocilia (inner ear hairs). I'm not blaming my doctors for anything: the chemo saved my life, at least for now. But I know of other Mayo patients who had the same thing occur, although I do not know specifically what types of chemo they were given.

Feb 3, 2019 · Tinnitus and brain tumor in Brain Tumor

I always had mild Tinnitus, but I think that when I received chemotherapy, it caused my Tinnitus to become permanently severe. All the time.

Feb 3, 2019 · I just need answers. in Just Want to Talk

Sheila, I am a Mayo patient. I wish I could help you.

I have two questions for now:
how does weight-loss surgery cause a loss of sight?

A doctor (not at Mayo) once told me, "A patient has to be an advocate for their own health." I assume he meant that the patient has to tell each doctor exactly how the patient feels, and what the patient wants, because doctors can't guess what is on a patient's mind.

Also, doctors are hesitant to give out much pain medication, because they are either afraid that patients will become addicted to the pain medication, or because they mistakenly think the patient has nothing wrong with them, and instead is a drug addict.

So they often won't do it unless the patient makes sure that
everyone treating them knows EXACT:LY what they have been diagnosed with, reads their ENTIRE medical record, starts to understand just how RELENTLESS their pain is, and how THE PATIENT'S LIFE depends on getting relief from the pain.

You may have to write and call and send messages to your doctors over and over and make sure that everyone who sees you gets the message, that YOUR LIFE DEPENDS ON GETTING ENOUGH RELIEF.

Is your pain making you suicidal? If you are, tell them!