Hello everyone! I was recently (finally) diagnosed with collagenous gastritis after a lifetime of unknown questions. When I was about 8/9 yrs. old I had severe stomach pains and vomiting and my pediatric GI discovered a bleeding ulcer due to h. pylori infection. I took medication to clear the infection but the gastritis continued and she teetered back and forth over possible Crohn’s of the stomach diagnosis despite inconclusive tests. No other reasonable explanations for the continued inflammation were considered. No memorable symptoms from teenage years to early adulthood and fast forward 15-20 years and I suspect due to heavy stress, my symptoms started to return. Two GI docs since then took biopsies and did endoscopes and noted mild to moderate gastritis and esophagitis. No labs noted collagen banding in the biopsies. I wonder what the lab protocol is for testing biopsies- was it missed all these years or has it recently developed? Previous GI doc tested for celiac in 2009 and I had elevated igG but all others were negative so he didn’t think it was significant. Now my new doctor at UCLA ran a full celiac workup and all tests (including genetic) were negative for celiac but she found I was igA deficient and very low on iron. I’ve had IV infusion and feel much better but am not currently on any medications. In my opinion,I think they will eventually find a link between bacteria in the gut and cell growth. There is so much we don’t know yet about the role bacteria plays but I am looking forward to more research being done on this (hopefully).