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Posts (13)

Jun 18, 2019 · Emotional implications of having a feeding tube in Ear, Nose & Throat (ENT)

Hi – no she never did experience any extreme reaction from IsoSource so it appears each body probably reacts differently. She always said she never felt hungry at any time but recognized the need to nourish the body.

Jun 14, 2019 · Emotional implications of having a feeding tube in Ear, Nose & Throat (ENT)

This may not be too helpful in the support area but could help in the food intake area.. Following considerable radiation treatment for a tumor at the base of her tongue my wife was informed that nothing further could be done. 2 years ago she could no longer swallow, even water. She had a stomach G tube installed and for 2 years all of her intake of medicine, food and hydration were by tube. Her prescribed food was 5 250ml containers of IsoSource with fibre per day.. She would take 1 1/2 for breakfast, 1 1/2 for lunch and 2 for dinner, all by way of a gravity feed bag.. In each case water was inserted before and after feed. I usually handled preparation but she was also quite able to do it herself if I was not available. She was also still able to speak reasonably well and was able to enjoy family and friends Showering and getting everything in place was always accompanied with some eloquence. This diet allowed her to maintain her weight without any other additives. The main thing is to try and be positive about your situation.

Dec 26, 2018 · Adenoid cystic carcinoma - left tongue base in Head & Neck Cancer

After an encouraging reort on Dec 9 Willa had a bone marrow test which revealed accute leukemia. Discussions with hematologist indicated extensive treatment was available. Willa was not prepared to undertake more treatments and declined. During the next few days she spent her time being with family and friends. On Dec 19 Willa passed away peacefully on her own terms. An amazing lady who will be missed by many.

Dec 9, 2018 · Adenoid cystic carcinoma - left tongue base in Head & Neck Cancer

It's a fast moving world we live in. 3 weeks ago Willa was hospitalized with a stroke. After scans and a MRI it was determined there was no connection with the tongue cancer so treatment at the moment is for the stroke which mainly affects the right arm and leg. She is being provided with physio by hospital staff while awaiting placement in a regional physio center. Recovery prospects are fairly good but will likely require a walker and home support. Willa's vitals are all quite normal and she is a fighter so we ( myself, 3 adult children and 6 grandkids along with 1 great grandchild) are confident that she will continue to maintain a positive attitude about recovery. The co-operation between our local Doctors and those at Princess Margaret Head and Neck cancer dept has been outstanding. We do have a February appointment at PM to review cancer side but attendace will be determined by her progress.
PS – I had a bit of a problem with my Nov 8th update which seemed to get out of place by date – hopefully this one will come up in order.

Nov 8, 2018 · Adenoid cystic carcinoma - left tongue base in Head & Neck Cancer

An update on my wife Willa's journey with rare adenoid cystic carcinoma of the salivary gland cancer. We attended a follow up appointment with her radiation oncologist at Princess Margaret Cancer Hospital (PM) in Toronto on Aug 23/18 . There had been no appreciable change in the size of the tumor since Feb. however she remains unable to swallow anything and all intake of food, hydraulics, medication remains by way of G tube. Her food intake consists of 5 250mlg containers of Nestles ISO Source daily which is sufficient to maintain her weight and energy. This process goes on very well and Willa has exceptional acceptance of the program. During this visit we asked about possible new trials which might be helpful. On October 3 we returned to PM and met with a Medical Oncologist and his team to review possibilities. One study would have involved taking Selinexor however it must be taken orally and not crushed which was a no go. Systemic chemotherapy was also discussed but with but results have not proven successful In the end Willa opted to continue seeing her regular radiation oncologist every 6 months and family doctor as needed. For those of you not familiar with the Canadian Health care system all of this including feeding equipment, food and drugs is covered by our government sponsored health plan.

Apr 16, 2018 · How much information do cancer patients need? in Head & Neck Cancer

In the past 2/3 years, following radiation, my wife Willa has made regular visits to Princess Margaret Cancer Hospital in Toronto , about a 2 1/2 hour drive, for a review of her inoperable tongue cancer. By the time we get home her oncologists full report of the visit is on-line to her . This report also goes to our Family Doctor. We find this a very helpful way to keep up to date on conditions and suggestions for ongoing care. Most of the info is well explained and if needbe discussed with our Family Doctor.

Feb 25, 2018 · Adenoid cystic carcinoma - left tongue base in Head & Neck Cancer

YES – Pain is maintained quite well with the two medications. Fentanyl are changed every 3 days and hydromorphone is used infrequently.

Feb 25, 2018 · Adenoid cystic carcinoma - left tongue base in Head & Neck Cancer

We attended at the Head and Neck section of Princess Margaret Cancer Hospital in Toronto on Feb 22 for a regular review of Willa's
condition by her Physician. Flexible nasal endoscopy continues to reveal the ulcer in the left posterolateral portion of Willa's left tongue base. Dr confirms that this inoperable ulcer is cancerous and no further treatment is possible. Main concern is possibility of bleeding of the ulcer which could be serious. Prognosis is that this is a very slow growing cancer and difficult to say what prospects are for life expectancy. She has had a new gravity tube installed recently as the first one had been in for almost 18mths. Pain continues to be dealt with Fentanyl 25mcg patch and hydromorphone as required. She receives 5 1.5 liter containers of ISOsource daily plus considerable water for hydration – all thru the tube as swallowing ability is non existent. Spirit is good and Willa is able to participate in normal social and family activities. We will return to Princess Margaret for a further review in August