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Posts (9)

Sat, Aug 31 10:57am · bone biopsy pain. in Blood Cancers & Disorders

@beanglow

I have had 4 bone marrow biopsies in the last 5 years. I have been given either propofol or versed along with fentanyl. With propofol I didn't have any pain at all with the versed and fentanyl I did feel some pressure but no real pain. The day after I had some pain when I sat down but nothing that a couple of Advil didn't take care of. If you have any more questions I will be happy to answer if I can. Good luck.

Wed, Aug 21 3:31pm · CLL - Spleen in Blood Cancers & Disorders

Hello @grecarmar

I do not have CLL I have splenic marginal zone small B cell Lymphoma. I had a splenectomy in July 2017. Before I had a splenectomy my spleen was 15 cm x 8 cm x 20 cm. 3 months after I had my spleen removed I had 4 weeks of rituximab. Am now in remission. I am not sure if this will help you but if you have any questions I will be glad to try and answer them.

Thu, Jul 4 9:19am · Delayed pain after bone marrow biopsy?? in Blood Cancers & Disorders

I have had 4 bone marrow biopsies done. The last one was on the 12th of June is year. I did not have any pain after the first two days. I also suggest calling someone about your pain. Hope all turns out well for you. Good luck.

Mon, Mar 4 7:41am · Reaction from Rituximab in Blood Cancers & Disorders

I also had no side effects to Rituximab, so I can't be of any help. Hope things get better for you. Stay strong we are all in this together.

Thu, Feb 14 2:34pm · Non hodgkins lymphoma spleen in Blood Cancers & Disorders

@caroldk I also am JAK2 negative & CD20 negative. Please don't feel alone there are a lot of great people here that you can always communicate with. As far as for SMZL it is slow growing and people live a good and long life with it. As for Mayo I can't recommend it enough. I am been to Rochester 3 times in the past two years and it has always been a great experience. Best wishes for you.

Steve

Thu, Feb 14 8:56am · Non hodgkins lymphoma spleen in Blood Cancers & Disorders

@caroldk I also have SMZL I was diagnosed in April of 2017 at Mayo Rochester. In July 2017 I had my spleen removed at Mayo. I went back home, then in September 2017 I had another bone marrow biopsy that showed that I still had lymphoma in the marrow. So I went on 4 weeks of Rituxan. I have the same problems as you do with fatigue, random pain in joints and muscles. My temps can range by up to 3 degrees from morning to night. If you have any questions just ask. If you don't mind sharing how did you receive the diagnoses of SMZL? Good luck to you.

Oct 4, 2018 · Non hodgkins lymphoma spleen in Blood Cancers & Disorders

I was diagnosed with splenic marginal zone small b cell lymphoma in April of 2017. The Doctors at Mayo Rochester removed my enlarged spleen July 2017. In September 2017 I had another bone marrow biopsy and flow cytometry and the lyphoma was still in the bone marrow. In October I started 4 weeks of Rituxan. Had no side effects to the Rituxan. After the Rituxan the lymphoma is now gone but I still have night sweats and fatigue . I am now on wait and watch until the end of January next year.

Sep 14, 2017 · Splenic marginal zone lymphoma in Blood Cancers & Disorders

I am a 65 year old man. I must have missed typed. It should have read ITP. Idiopathic thrombocytopenic purpura. My main complaint is fatigue. It started to get better a few weeks after my splemnecctomy but now has returned.