Member has chosen to not make this information public.


Member not yet following any Groups.


Member not yet following any Pages.

Posts (5)

Aug 24, 2017 · Collagenous Gastritis in Digestive Health

Funny I was warned off dairy and ALL carbs…I eat small portions of meat, chicken and fish … with some very soft steamed veggies…all hurts but somehow it works as then when it finally makes it down I do not have to deal with the intolerance issues
And yes it is SO hard to explain to others how it feels…words can not explain..I find exercise really helps and a positive mind set. It is a mind game after all … when it does not become acute (that is)
I wake up in the morning…scream (internally) they are all BASTARDS and then get up and start my day…my situation started 7 years ago…the SIBO stuff and stomach stuff (gastritis) started 2 years ago…

Aug 24, 2017 · Collagenous Gastritis in Digestive Health

Hi There…I am in the same boat…I am waiting for the fecal implant in hope…my husband will be the donor…we have some bacterial issues with his so he is on some treatment…I am using Cannabis oil (wow hard to get here as it is not allowed thus I am not sure what I am getting at times…and it helps when I have pain which might lead to a blockage…please keep me in touch with how things are going…I will post on if it helps me…tried all the antibiotics, motility drugs etc…not really helping…I love eating and eating is such a bugger…so so much pain as soon as I heat more then half a fist full…

Aug 23, 2017 · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

Thank you Pereira….I am reading with interest and empathy many of the comments others post…
From my brief experience diet and medication is controlling my SIBO but not negating it.
I am on Phase 1 of the SIBO diet of Nirala Jacobi (which I adhere to religiously except coffee and a bit of lactose free milk in it) and have done the antibiotics protocol twice (Rifaximin and Neomycin) and for my lack of motility so have tried all types of prescription drugs which have not worked….and will go alternative soon to see if that might do something…
I have a saying which helps me (I made it up)…I live life as through there is no solution yet I strive for a solution at all times.
This helps me cope with the daily life and get on with it…but never to strive for what might be.
I exercise nearly everyday which helps me focus and I do crafts to help me calm. Its really multidisciplinary.
I suffer boy do I suffer, I cry and I smile…
If any one of your mentors might have insight on Stomach paralysis or lack of motility I would be so grateful
And I would be happy to share limited insights as a patient with “pleasure” – I would prefer to share a drink with pleasure


Hello…I have had my colon, spleen, gall bladder, had 2 small intestine resections and total hysterectomy as a result of a disease called Multicystic peritoneal mesothelioma…this is a form of asbestos poisoning which takes hold of one’s peritoneal area. Since my last operation (12 hour operation with internal chemo ) (and I have had about 15 operations over the past 7 years) I have had terrible digestive issues and pain …I cannot eat without much pain and I cannot go to the toilet without three daily enimas. I have tried all the SIBO treatments, I eat a restricted diet without carbs and dairy…I exercise, I try to be positive, I do it all by the book and a bit more and still I suffer so so much…I cannot work, I cannot socialise properly and I am sad…I know I am very lucky to be alive but I suffer so and I am not myself….so you asked 🙂 and this is half the story…I am still looking for answers to find a more normal less painful life….
and by the way I went cold turkey off all the opioids after 5 years which was hell…but it is behind me…drug free except some experimental drugs for the lack of motility…

Aug 17, 2017 · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

Take a look at this Diet which has helped me extremely
I have taken a mixture of Rifaximin and Neomycin for three weeks which seems to help alleviate symptoms…
There are herbal protocols you can also follow … In the States no 1 seems to be Dr. Allison Siebecker from Portland.
I use raw ginger to help me with nausea….
It is so harsh and wish you wife well…
Priobiotics is great just fine the right ones and eating priobiotic foods are great but make sure it is aligned with any intolerances…the bacterial LOVE carbs, lactose and starch…