Oh yes he has a J tube because he can’t even swallow water! It is in his intestine not the stomach
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I just did read your post. I am so sorry you guys are going through this and so much! I just hate this cancer!!! We have listened to the doctors but I am thinking they are only human and we are all so unique. What might work for one doesn’t always work for the next. Thank you for sharing all you have both gone through. I will keep my ears and eyes open and ask questions . When this first started the surgeon told us that if we had cancer this was the best one to have . From the sounds of it, I don’t think you and I know we don’t believe that one. Yes, God Bless us all
We met with the tumor board mid September. They have referred my husband to 5 weeks of radiation , 5 days a week and chemo once a week for the 5 weeks. He starts tomorrow. After this is complete they will do a scan to see of the tumor has shrunk. Because the doctors at Stanford biopsied the tumor his tumor has HER2 and responds to herceptin he will have 3-6 months of infusions of this drug along with chemo. One will be done every two weeks and the other every third week. Then another scan will be done. The cancer was found in the scar tissue and some of the lymphs. It is larger than it was originally which totally amazes me! How did this happen and in a months time? It has been very difficult, I can’t even express how difficult. In January he had the removal of the esophagus and it was recreated by using his stomach. The scar tissue was growing afterwards so they would do dilations then a stint was placed in his throat. Then it was getting hard to swallow so the stint was removed in July and that is when his vocal cords became paralyzed. Then the tracheotomy so he could breath. We are hoping that once he starts his treatments that he will be able to eat and swallow. Pretty bad he can’t even swallow water!
So if anyone has experienced any of this I would sure welcome all the support and hope you can share.
How would I be able to read all your information you have collected regarding esophageal cancer? My husband had the surgery, now we are wishing he never did. It has been down hill ever since! Now he has the cancer recurring and it hasn’t been that long plus it is in his lymphs now and surgical area.
I am not sure what questions to ask. Several treatments have been mentioned; immunotherapy, chemo, radiation. I would love for my husband to be able to swallow and eat by mouth. When you are hit with all of this you don’t realize how much we live our lives around food! Even a simple cup of coffee or tea. I am hoping some could help me out with questions I should be asking however I may have to wait until we see what is prescribed.
My husband was diagnosed with esophagus cancer Aug 2016. He had 4 rounds of chemo and surgery in January to remove and reconstruct his esophagus. Has had many problems since, many dilations and even a stint. The latest with the removal of the stint his vocal folds paralyzed and he had to have an emergency tracheotomy, July 2017 but cancer free. Now in one month we find the cancer is back and in a few lymph. He has been referred to Stanford GI Tumor Board. Can anyone help me with questions I can bring before the board? This has been so upsetting and unbelievable! He can’t talk, eat/swallow and is having a hard time breathing!