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Jul 26, 2018 · CLL in Blood Cancers & Disorders

Well, I started taking Imbruvica, 420 mg, on July 6th, 2018. Only two days where I felt nauseous with a headache. My wbc # peaked at 100,000 and 78,000 as of last week. My hemoglobin and platelets are also low which they are monitoring this week….blood draw in two hours. Hopefully the numbers will come up on their own. If not I will take a lower dose or stop for awhile…
The anxiety I have with all of this is crazy at times.

Apr 29, 2018 · CLL in Blood Cancers & Disorders

I am still wait n watch…my treatment will be Ibrutinib since I am 17p deletion. My numbers are slowly decreasing with a rising WBC of 60,000. I have two large lymph nodes on my left jawline, which are not painful, that I am always trying to hide. My oncologist said the decision is mine as to when I want to start…

Feb 9, 2018 · CLL in Blood Cancers & Disorders

As of January 29 my hemoglobin and platelets are below the normal low, I went for a second opinion with a CLL specialist at Froedtert in Milwaukee. If my numbers continue to lower he said I will need to start treatment….FCR for 6 months or Ibrutinib 3x a day forever. Does anyone have any thoughts, pros or cons of the two treatments?

Jan 8, 2018 · CLL - newly diagnosed in Blood Cancers & Disorders

If the hemoglobin is from iron deficiency than eat foods rich in iron

Jan 6, 2018 · CLL - newly diagnosed in Blood Cancers & Disorders

We have not talked about treatment as of yet. He is waiting to see what my numbers are in 4 weeks.

Jan 5, 2018 · CLL - newly diagnosed in Blood Cancers & Disorders

Has anyone experienced low hemoglobin and platlet count? I have been told I can not change my platelet count but possibly can change my hemoglobin with adding certain foods to my diet. I go back for lab work in 4weeks. My wbc is 41,000 as of now, went down from my last visit. Curious

Dec 7, 2017 · CLL - newly diagnosed in Blood Cancers & Disorders

Thank you, I see my oncologist in 4weeks and I will mention this. I will also look into a CLL specialist.

Dec 5, 2017 · CLL - newly diagnosed in Blood Cancers & Disorders

Yes, the tube was put in on Dec 1st, and I was told I can leave it in or remove it in 6 months, my choice. The constant sound of my heart beat in the ear is hard to adjust to, not sure this is normal. I will call the ENT this Friday and voice my concerns. The tube did relieve the pressure I was feeling but did not correct the muffled hearing. I am guessing an enlarged lymph node is involved. I also have an enlarged gland, the size of a large gum ball, on my jaw line which I have been told is a salivary gland or lymph node ….the ent and oncologist can not agree. I will throw myself into Christmas for now and see what the oncologist has to say when I see him in January.