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Aug 13, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Do any of you on the “big 3” have a preferred probiotic that you take to in conjunction with the antibiotics?

Jul 29, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks so much, Linda. The NTMINFO web site has a lot of great info.

Jul 29, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

For those of you with MAC/MAI – my mother was recently diagnosed. She lives in southeast Pennsylvania. She would like a second opinion and was wondering if anyone knows anything about the hospitals in the Philadelphia area. Penn Medicine has a lung center with a Mycobacterium clinic. Also open to any other hospitals/clinics on the east coast. Any advice appreciated.

Jul 26, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Wow! Thank you so much for compiling all of this info, Linda. This is so helpful. I will copy and paste and start a file for my mom. I’ll encourage her to check out this forum – I think it would be extremely beneficial to her. I think it will do wonders for her to know that she is not alone. Thanks again!

Laura

Jul 26, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello all. My mother was just diagnosed with MAC/MAI. She’s been so down in the dumps. Are there any tips/useful information that you can share that you wish you had known when you were starting out? She started the 3 antibiotics today – when do most of you take these? Morning? Afternoon? Evening? With meals? Between meals? She is dealing with horrible GERD – can you take antacids or reflux meds along with the antibiotics? Any info that you can provide will be so helpful and very much appreciated. Thank you!!