About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (5)

Aug 7, 2017 · Has anyone had a temporal lobectomy, resulting from epilepsy? in Epilepsy & Seizures

Hello @brjudevo79, I am so very sorry for situation. I am afraid I cannot offer a solution. I can share with you my situation and experience. I started having seizures when I was six my story is a long one so I will spare you the details. too have been on so many medications I have lost count and at one time I was on Keppra and have been on Topamax and several other mediations at the same time. I was seizure free for a long time until I hit menopause. I began having petite mal seizures at the age of 48 and I am still having them now 10 years later. I have the once a month for just a week or so during the month. I have anywhere between 50-100 a day and they last about a second or two. My tests all come back normal because I cannot go in for the tests when I am actually having the seizures. I never know when they are coming. At one point I had them so often I could not even remember my telephone number. It was awful so I know the frustration you are feeling. I was taken off of the Topamax, my doctor tried a different medication because he felt the Topamax was not working. I realized after my doctor took me off how many side effects I had from it. It is hard to say if my memory issues were a side effect from the Topamax or if it was a result of the amount of seizures I was/am having. The seizures did not stop on my new medication either. I do not have any problems with my memory now except for the period of time I am having the seizures. During the week of the seizures my memory is terrible. When I am not having them my memory is fine. One thing that did happen, I was really good at math and use it in my job. I cannot do any math without writing it down or using a calculator. I can’t add anything in my head anymore. I left college because of my seizures so I can understand how you feel. Look into the side effects of your medication and if you have not, talk to your doctor about your feelings and side effects. Sometimes it’s really hard but there might be a solution. Don’t give up your dream of going to college.

Jul 26, 2017 · Menopause and Changes In Seizures in Epilepsy & Seizures

Thank you for your sharing your story and the article. I wish you the best.

Jul 26, 2017 · Menopause and Changes In Seizures in Epilepsy & Seizures

Prior to menopause I had been seizure free for 20 years. I have been on seizure medication since the age of six when I was diagnosed with epilepsy. At the age of 48 and premenopausal I started having seizures. Now ten years later post menopause I continue to have the seizures. Medication has not worked and hormone therapy has not worked. My seizures come almost every month and last for about 7-8 days and then they stop. I have tried different medications and even hormone replacement therapy and so far nothing has worked. I am wondering if there is anyone who has had or is having a similar experience dealing with a change in their seizure activity relating to premenopausal or menopausal. If so what have you tried, articles you may have read? My doctor is at a loss and has somewhat given up. I have read articles on Catamenial seizures however these do not apply to me. It’s difficult to find any literature about this subject or possible solutions.

Jul 25, 2017 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

I was so glad to see your post. I am a 58 year old woman, I was diagnosed with epilepsy when I was 6 years old. I have been on quite a few medications in my lifetime sometimes 4 or 5 at a time. My journey with epilepsy has been a mixed basket of sorts. Although on medication, I had seizures on and off all throughout my childhood and teenage years. I suffered from both Tonic-Clonic (Grand Mal) seizures as well as Absence (Petit Mal) seizures. Although still on medication I made it twenty years seizure free. At the age of 48 and premenopausal I began having seizures similar to the Absence seizures I suffered 20 years ago. The seizures came every month and lasted for one week 7 or 8 days. I had so many all day and night long I could hardly function. I have been on many different medications since then. Fast forward 10 years – to now. I am still having them post menopause. Sometimes a month here or there is skipped and I am fortunate to have a seizure free month. The intensity of the seizures has lightened somewhat. I can have anywhere from 5 – 100 or more a day, they last 1-2 seconds and almost no one can detect that I am having one. I joined this group hoping to find someone that is in the same or similar situation as well. My doctor is at a loss as to what to do. I tried hormone therapy and it didn’t work I am not sure if it has worked for others. Trying to schedule tests has been a failure, I have to be within the week of the seizures to have the tests and so far the clinic has not been able to schedule me during the time frame that all of this occurs. Any information, articles, etc. would be appreciated.