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Posts (136)

Sat, Jan 11 1:30am · FGFR3 ANTIBODY in Neuropathy

Hi Lisa Lucier, I do not have small fiber neuropathy, that I have been told. However, I do have Peripheral Neuropathy that is autoimmune caused by the FGFR3 antibody. I also have not ever had IVIG therapy. Darlia

Sep 22, 2019 · Hashimoto's Thyroiditis and IVIG Treatment?* in Autoimmune Diseases

Thanks for the helpful info. I'll show my endocrinologist.

Sep 20, 2019 · Hashimoto's Thyroiditis and IVIG Treatment?* in Autoimmune Diseases

Thanks for the info John but if surgery removes the thyroid then you have to
go on meds anyway for the rest of your life to replace not having the hormones.
I don't understand any benefits.

Feb 23, 2019 · Inclusion body myositis in Autoimmune Diseases

Hi Everyone!. I have not posted in a long while. Too busy or tired or both!. Anyway, I was tagged in this post but I do not have IBM so not sure where the Moderator is going with this. I am sorry that I don't have any info on this autoimmune disorder even though I have plenty others. Take it easy ~ Darlia

Aug 5, 2018 · Hand osteoarthritis with mucous cysts in Bones, Joints & Muscles

The dermatologist has now injected steroids 3x and since it always comes right back, time for the hand surgeon.

Aug 5, 2018 · Hand osteoarthritis with mucous cysts in Bones, Joints & Muscles

I am scheduled to see a hand surgeon Wed. In the mean time…I have some new ones starting on at least 2 other fingers!! Help!

Aug 5, 2018 · Renal Cancer: What are you supposed to feel after surgery? in Cancer

Welcome @jewels5 .. I am a renal cell carcinoma survivor. Right nephrectomy. Done in March 2008, so 10 yrs now been cancer free. Mine was caught at early stage 1. Only 1 cm in size. Encapsulated and back then there wasn't as many options so surgery was the best choice. I've been living a normal life on one kidney. I get a scan every year for the FU but because it was small and had not spread, no other actions were needed like chemo or radiation. They did tell me that kidney cancer is the slowest growing and that I'd already had it like 3 yrs when they discovered it. I had no symptoms yet either. Scarey that it had been in my body that long, I thought. It was seen on an ultrasound that was done to basically take a look at my stomach due to Acid Reflux and the Gastro Dr had ordered the complete abdomen be done. Sooooo. I was thankful for that. I was only 48 when it was found! Young and being female it was not common. I suspect it came from either smoking (I'd quit in '99) or mold in the house or being around asbestos without knowledge. Guess we'll never know.
If it's spread to other parts of his body, chemo is the usual choice I've heard. The scar I have is in my abdomen and its about 7-8 inches. I have keloid scar now too as it runs in our family. The recoup time in hospital was like 6 days for me. If I can help with other ?'s I'll be happy to help. Darlia

Jul 19, 2018 · Third time with serotonin syndrome, how to prevent this happening? in Mental Health

In my study of this, its the combination of certain drugs. These that you've listed do not sound like any that are involved when taken together. You can do more research at looking up serotonin syndrome on the internet. Even the reference lit that came with my meds said to beware of this syndrome.