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Posts (7)

Apr 8, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I was diagnosed last July in a CT with MP and finally was able to find a doctor that was knowledgeable in it. He ordered a MRI enterography with contrast which did not show any MP. He said it I did have it I don’t any more. The last couple of days I feel like I have something in my epigastric area. It is also a little sore when I press on it. I don’t have heart burn. I was wondering if this could be MP coming back? The last time I had pain in my flank area. Any thoughts would be appreciated. Thank you.

Dec 9, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hello, @vdouglas sorry I haven’t written sooner but I just got my test results from my MRI this week when I went to the doctor. Still very confusing. The MRI did not mention any MP but did show a thickening (towards the sidmoid colon) that was not there when they did my CT scan in July when it showed MP more near my small bowel. I also have a narrowing in the same area as the thickening. He wants me to have a colonoscopy to investigate. I had one 5 years ago that was normal. I asked him if I could wait to January and he said he saw no problem waiting until then (my son is getting married the end of December). He thinks I could have diverticulosis at the best and a remote possibility of colon cancer. Although I may have to get the colonoscopy sooner because I have been experiencing a soreness in my abdomen, more like an ache from when you do too many sit ups. Unfortunately I have not been doing sit ups. I almost feel like I did in July when I was diagnosed with the MP. No diarrhea or bleeding. No nausea, just a back ache besides the soreness in my abdomen. I have way to much to do with baking cookies for the wedding and Christmas to go get the colonoscopy done, plus no one to really take me right now. End of the year and everyone has used their days off.
Sorry I am rambling just stressed.

Oct 17, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I am on a Low Phosphate diet so there is a lot of food I am not supppose to be eating like dairy, chocolate, nuts, dark green vegetables to name a few. I think cinnamon is something that bothers me. Of course it is all the foods I like, it couldn’t be liver. Lol

Oct 16, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Looking back I remember in the lat 15 years having episodes where my stomach felt sore with no other symptoms. I use to say it felt like someone socked me in the gut or like I had been doing hundreds of sit ups or crunches. I wonder if this was the MP. Has anyone else had this. For the past week I have been getting this feeling a lot. Having an MRI enterography on Nov 6. When I went to see my GI doctor I hadn’t really been experiencing too much. But for the past week my stomach has been hurting and I have been slightly nauseated. I can not take steroids and anti inflammatory medications bother my stomach, not sure what other treatments there are for this. Wondering if something I am eating is causing it. Please any input or suggestions appreciated. Suppose to go back to the doctor Dec 5, but I may have to be calling him sooner the way I have been feeling.

Oct 1, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

So from everything I been reading on this group, I decided I need to be more proactive. I was diagnosed through a CT scan in the ER. At the time I was told I had an inflammation probably diverticulitis, although I was not having stomach pain only flank and back pain. The ER doctor stated it was probably because it ran close to my kidney area. He put me on Flagyl and another antibiotic for a slight UTI and referred me to a general surgeon. The Flagyl reacted badly on me. Severe acid reflux and just made me feel terrible. Ended up back in the ER to get Flagyl changed (my pcp was out of town and my appointment for surgeon was 3 days away). This ER doctor said my CT scan was normal and just to stop the Flagyl, which I gladly did. Decided to keep my appointment with the surgeon and got a copy of my CT report to take with me. (I always try to get copies of to take to the doctor because too many times it was never received) To my surprise, my CT was not normal, it showed mild mesenteric panniculitis. So far not one doctor has mentioned that my CT showed this. The surgeon sent me for an Upper GI and an esophageal manometry study and now wants me to go for a small bowel series. So after reading most of your post, still working my way through them. I have made an appointment with a gastroenterologist near me who treats MP. Can you please help me in determining what questions I should me asking when I go for my appointment? Fortunately, my case is mild and seem to only experience bloating with a feeling like something is there by my epigastric area. I also experience occasional mild nausea. I have had this for years and have had endoscopies which showed irritation. I have been on Nexium for this. I had my gall bladder taken out laparoscopy in 2015. I am beginning to think that all these symptoms are related to the MP. My one concern is that the treatment is steroids and I can not take steroids without it causing me to have avascular necrosis. (I already have it in 5 joints) I do end up having to take it if my asthma is bad, which I try to keep in control unless I get an upper respiratory illness and my doctor works with me on keeping me on the lowest dose possible and for the shortest time possible. Other then that I avoid taking steroids under the advice of my AVN doctors. I see some people take non-steroids inflammatories like Meloxicam. I was wondering what other types of medications anyone has taken and any side effects they had with them. I know knowledge is important when dealing with a rare disease, any disease really, so I am trying to learn as much as I can.

Aug 18, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Thank you for your help. Sorry it has taken me so long to get back but I was having computer problems. I had gone into the ER with flank pain for possible kidney stone (which pain wasn’t real bad so did not think it was a kidney stone)and was diagnosed through a CT scan. I was put on Flagyl, which caused bad side effects and had to stop. I can’t say I really have symptoms other than I have a feeling like some thing is there in my epigastric area and bad reflux. I have been dealing with this for a couple of years. I do get a feeling of nausea at times but it is mild. I have seen a gastroenterologist for this and he did an endoscopy and said I had some gastritis and to watch what I eat. I have been on Nexium for years but it really does not help. I was referred to a general surgeon from the ER and had an UGI and an esophageal manometry done. UGI showed a small sliding hiatal hernia, still waiting on the esophageal manometry results. Can my reflux be caused by the MP? In my readings so far, I have not seen this as a symptom. There is a procedure they can do to help the GERD but it involves surgery and I have read that surgery could aggravate it. Any and all information will be appreciated.

Jul 17, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I just found out I have mesenteric panniculitis after having a CT scan in the ER. I have a follow up appointment and I am trying to find out as much as possible. What questions should I ask the doctor? What test do I need to have and which ones should I avoid? They have me following up with a surgeon, is this the kind of doctor I need to see or should I be following up with someone else. This surgeon does specialize in the upper GI tract. I read this is rare but treatable and sounds like it can go in remission. Am I right. I also have another rare disease called Avascular necrosis or AVN – which I got from taking steroids for my asthma. I saw that steroids is a treatment for this, is there others? Any information would be greatly appreciated.