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Mon, Mar 11 10:40am · Idiopathic neuropathy and dizziness. in Neuropathy

I am a caregiver for a man who has the same diagnosis. We have been trying to receive help from doctors for 8 years now. We have found that ALL DOCTORS ARE NOT CREATED EQUAL. We have to check out several doctors of the same specialty to find one willing to try to help. We have been to every specialty. We tried spinal cord stimulator trial with no good results. We had treatment by a Chiropractic doctor for 6 months last summer. My friend had lazer treatment, red light, scrambler machine from Germany, special vitamins to mix and drink, and 6 hours a day on machines that help stimulate blood flow and oxygen in his feet, legs and hands. We ate organic food with no sugar or white flour. No relief from his acute pain. I have researched for 8 years and tried anything that sounds reasonable. My friend is light headed. He finds it difficult to stand on a ladder. When he stands from a seated position, he will sometimes fall back. He is light headed. I had the test completed on DNA from 123and me. They give medical information that has been helpful but know that you must spend several weeks understanding and researching what they say because of medical terms. Where both parents give the same gene, I found some leads to check out. He is being treated by a Neurologist now who is exploring B-6 toxicity and has ordered a spinal tap to check a protein imbalance. He will have this done ASAP because the doctor indicated that this can be treated with good results and sometimes causes neuropathy. This is the first doctor who will test for this and offers hope. My research showed that we needed these tests last year but could not get a doctor to test for this.. Some doctors have given up hope of ever having a cure and just want to offer pain medication. Keep searching and find the right doctor. Good luck to you.

Apr 15, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I am a care giver for my partner who has peripheral neuropathy. All he has been offered is pain medication. If you do the research, you will find that many times the medication will make your condition worse. We have found a facility in Charlotte, NC and you can see this on line at: http://selecthealthofthecarolinas.com. They do not give pain medication and they say they can actually help the pain of neuropathy. They use lasers and other type of treatment from Germany. We will be seeing a doctor there in mid May. We will be interviewed and we hope they will accept us and we can start treatment. We are praying that my partner can be helped. We have started a special diet of all organic foods and no artificial anything in food. The all natural foods are helping some. WE eat only all natural foods and only take vitamins and minerals that are all natural and kosher. If a cure ever is found for this problem, I feel that it will be food/nutrition related. The government will not pay for vitamin therapy because of the drug companies. If we are successful, we will be shouting about it on the internet. I wish you the best and we can feel your pain. Best of luck.

Feb 27, 2018 · Is there any connection with statin use and neuropathy? in Neuropathy

With so many millions of people who suffer from this painful neuropathy, you would think that some doctor would find something that works. We have been to around 18 doctors and all that is offered is pain medication. With lots and lots of research, you will find that the pain medication only works for a while and even the largest dosage soon does not stop the pain. I have found some statements on the internet that the pain medication, while helping some with the pain, will many time make the condition worse. I really believe that when something is found to stop this pain and really help this condition, it will be something to do with nutrition. Doctors are not trained in the field of nutrition and know absolutely nothing about eating right and taking vitamins. Our doctors will not even talk with us about nutrition. I spend 20 to 40 hours per week doing research. I can understand your pain because I watch the one I love hurt so badly all the time. I am determined to research and keep trying things to "rule out" until I find something that will help. I feel alone most of the time because the doctors will not help me. When I ask for a test to be ordered, many times they laugh at me and just refuse. If I do find anything that works or helps, I will be sure to post and hope all of you post anything that helps you. Wishing you the best, Chipper.

Feb 27, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I am a care giver for a person with neuropathy. He was placed on cymbalta for nerve pain. This drug makes one feel wonderful. It is given for depression also. This drug caused divorce in my family. This man could not make decisions for himself. He spent $30,000. in three months for junk. He became a child. He was arrested for shop lifting. He thought he was superman and could do anything. When he tried to get off this medication, he was very sick and it took almost two months. He had brain sparks for 2 years after getting off this medication. If you are thinking of taking cymbalta, and doctors joyfully order this for you, then please read what people are saying on the internet. It has ruined attorneys and doctors and other people that have high intelligence. Please be careful with Cymbalta.

Aug 3, 2017 · Is there any connection with statin use and neuropathy? in Neuropathy

I was a worker’s compensation adjuster for 30 years. Carpal tunnel was a condition that many of my workers had to deal with. Carpal tunnel is brought on by repetitive motion. No exercise please. Rest the wrist and most wear gear to keep the wrist from much movement. If your carpal tunnel is brought on by repetitive motion and you keep doing the same activity after surgery, then the surgery will not help you very much. The repetitive motion is causing a spasm that bumps/strikes the carpal bone in the wrist. A piece of bone is removed with surgery but the spasm will keep happening with continued over working of the wrist. I suppose that there could be another problem that would cause carpal tunnel pain but I am not aware of any. In 30 years, I never sent any of my workers for PT. The owner of the business would change working positions so that the same movements were not repeated after surgery. If you have an acute carpal tunnel problem, chances are great that the condition will wake you up in the wee hours of the morning with very much pain. I have found, for me, that in cases like this, I get a second opinion before any surgery. Good luck to you and I hope you feel better soon.

Jul 14, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I am a caregiver. My partner has idiopathic neuropathy. In the past 3 to 4 years we have seen every specialty of physicians that we can see. Some of the tests, etc tried are: EMG(needle in the legs), MRI, Blood tests of every kind, Tens machine, a trial for spinal stimulator, very large dosage of Vitamin B-12 injections for several months, My partner does no not have diabetes. He was treated by a chiropractic doctor and a homeopathic doctor with trial of multiple vitamins and minerals. He has tried physical therapy, He has seen two different pain management doctors in two different groups of doctors. He even tried a foot doctor. He hurts so badly that he does suffer from depression at times because of the pain. He never gets any relief. How does one suffer acute pain day and night for years? He has tried neurontin, Lyrica, and cymbalta with no relief. He had a very bad time with cymbalta. It was so difficult to stop taking cymbalta and he had brain sparks from that drug for months after he stopped taking it. We live in the Jackson Mississippi area and most of the doctors in our area just have no answers for us. I think that they fail to help patients so often that they have given up. We are in process of trying to decide if we should try the Mayo Clinic in Florida. We have no other doctor to help us in our area. Both feet are numb with acute pain. He can not wear any shoe that touches his toes. He wears sandals with socks year round. HIs hands are starting to be numb but no pain there yet. Is there anyone out there who has this acute “hopeless” problem? Has any physician helped you to find relief?