I am a caregiver for a man who has the same diagnosis. We have been trying to receive help from doctors for 8 years now. We have found that ALL DOCTORS ARE NOT CREATED EQUAL. We have to check out several doctors of the same specialty to find one willing to try to help. We have been to every specialty. We tried spinal cord stimulator trial with no good results. We had treatment by a Chiropractic doctor for 6 months last summer. My friend had lazer treatment, red light, scrambler machine from Germany, special vitamins to mix and drink, and 6 hours a day on machines that help stimulate blood flow and oxygen in his feet, legs and hands. We ate organic food with no sugar or white flour. No relief from his acute pain. I have researched for 8 years and tried anything that sounds reasonable. My friend is light headed. He finds it difficult to stand on a ladder. When he stands from a seated position, he will sometimes fall back. He is light headed. I had the test completed on DNA from 123and me. They give medical information that has been helpful but know that you must spend several weeks understanding and researching what they say because of medical terms. Where both parents give the same gene, I found some leads to check out. He is being treated by a Neurologist now who is exploring B-6 toxicity and has ordered a spinal tap to check a protein imbalance. He will have this done ASAP because the doctor indicated that this can be treated with good results and sometimes causes neuropathy. This is the first doctor who will test for this and offers hope. My research showed that we needed these tests last year but could not get a doctor to test for this.. Some doctors have given up hope of ever having a cure and just want to offer pain medication. Keep searching and find the right doctor. Good luck to you.