Greetings…welcome to our first reunion, Sarah, @emyliander, and Ellen @helenfrances. It certainly does seem like it has been a long time since we had an update and a timely conversation? Sara, @emyliander, how is your new home? Are you all moved in? I have to ask…..do you have a garden for your flowers? And I hope your daughter is tucked away at her special school or is COVID19 still mandating that she remain with you.
And how about you Ellen, @helenfrances? You, in June, were waiting to complete a withdrawal from Clonazepam and continuing to do research and some shared decision making about your road ahead with your neurologist.
I think in June, we were all talking about how cognitive impairment at the mild stage was affecting our lives. Do our life partners and families recognize our somewhat staggering memories? I think you were looking at a shared support group or class with your husband Sarah. And I was asking you to get a medicine review to make sure those stomach issues were being taken care of.
I will share with you a couple of medical hurdles that I find challenging right now. I found a tiny crunchy nodule on my sternum which ended up being squamous cell carcinoma and was promptly surgically removed. Now I wait like so many others who receive a cancer diagnosis of any kind.
You're not going to believe this one…..I sure didn't until I had spent several days in what I call an itch bomb. It is called neuropathic itch and does its annoying work inside your body. No matter how hard you try you can't scatch it because you can't reach it. So now I am being a guinea pig for different medications to see which might work best without side effects. At the end of two weeks, I make a switch and we see what happens with a new trial.
So…fill me in and fill me up with news and highlights. It seems like things are pretty quiet with the travel restrictions. I must admit I am hungry for a play at the Gutherie. Dinner at Sea Change…..actually sitting in a restaurant might also be nice. Shoot, I would even go to our adopted granddaughter's softball games if I could remember the day. And that is where I will end for tonight. I am noticing greater difficulty with recent memory especially when I am talking and lose my thought. I see people either trying to help me by feeding me the words or looking away as if they haven't noticed.
How are your memories holding up………do you have any tricks or hacks to share? As Ellen says…write any time. And I say…..do it now or you just might forget. My very best to you both……..I would love to hear from you.
May you have peace and ease.