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Nov 6, 2018 · chronic erythema nodosum in Infectious Diseases

@alexahercamp I had EN for years, the only thing that got rid of it was giving up gluten. I dont know if it will help you but that seems to keep mine away.

Mar 2, 2018 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

7 years is a long time to be in pain 🙁 When I first started flaring up, everyone thought I was depressed. No one believed me that I was sick. It was terrible and I can totally relate to what you are going through. I've mentioned this before on this thread, and chances are, you've tried it. Have you ever done an elimination diet? When I avoid gluten, 90% of my symptoms go away. I've heard that gluten and dairy can trigger an autoimmune response. If you haven't already, try going gluten-free. Let me know if it helps!

Jul 19, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

@kim4hope I’m really sorry to hear that you’ve been struggling. I’ve been there and it sucks. It’s a shame that western medicine doesnt have all the answers. I’ve had luck controlling my symptoms with the gluten and I really hope that going off gluten provides you with relief. I’ve also done acupuncture and seen some other alternative medicine drs. I recommend thinking out of the box.

Jul 19, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

@kanaazpereira – if you’re into home remedies, I used to make a shot every morning of Tumeric, fresh juiced ginger, E3 live, Flax seed oil, lemon juice, and cayenne pepper.

Jul 19, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

@gailb you can get tested for celiac disease but not for a gluten intolerance. I am not a dr. but I always assumed that people with celiac have stomach problems but our symptoms are autoimmune.

Jul 19, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

@kanaazpereira I took prednisone for the welts, advil for the pain, and adderall or vyvance to stay awake. The gluten for me was the only way to really get everything under control.

Jul 11, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

I’ve had Chronic Erythema Nodosum for 5 years. I spent a year in bed and no one could explain what was going on. I went to the best Dr’s in New York, many of whom saw my welts but still thought most of it was psychosomatic. It’s crazy that it took going to a physical therapist to figure it out, he casually mentioned that going off gluten would to decrease my inflammation. I’ve been off gluten ever since and now I’m a fully functioning human. My legs still hurt when I walk, and I still sleep more than most, but I can live my life. I highly recommend removing it from your diet to see if it helps as I wish someone had told me sooner!