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Posts (13)

Aug 21, 2019 · What can cause ANA titre of 1:2560? in Autoimmune Diseases

Hi, I didn't see your post until now. I can't believe how many of your symptoms I've had, right down to the left-side numbness and tingling. So miserable. I'm really sorry you've experienced all this same crap.

I did consider Lyme disease back when I first got sick. I've been bitten by a handful of ticks since moving to Europe, and we live where Lyme is common. Despite that, none of the doctors here even suggested it as AA possible cause of my symptoms. I had to ask an internal specialist to test for it. The test was negative. Another doctor again tested for it, as well as several other tick-bourne disease, and all tests were negative.

At this point (nearly 3 years of being sick), I'm convinced it's a chronic bacterial infection. It's likely something infectious (my hunch and doctors' opinions), and I feel SO much better after antibiotics. Then the symptoms come back. Doctors here say it's absolutely impossible for a bacterial infection to cause elevated ANAs. Agh! So not true.

How were you, treated for Lyme? I assume you took antibiotics? I'd love to know how you're doing now, if you happen to see this post.

Oct 4, 2017 · What can cause ANA titre of 1:2560? in Autoimmune Diseases

Thanks @johnbishop. I’ve been following that thread but didn’t see that any of the folks who commented actually have AIH. I was about to post a question directly to @luserm1 but then saw his recent comment about being diagnosed with something other than AIH. I didn’t think it was particularly uncommon, but maybe I was wrong…?

Oct 4, 2017 · What can cause ANA titre of 1:2560? in Autoimmune Diseases

Hello All. So I searched around on Mayo Clinic Connect for a forum on Autoimmune Hepatitis and didn’t find one. Not sure if this is the best place to post this, but if there’s anyone who happens to see this and has been diagnosed with AIH, I’d really appreciate it if you’d be willing to share how you were diagnosed. Thanks!

Sep 26, 2017 · What can cause ANA titre of 1:2560? in Autoimmune Diseases

@taterjoy I thought so too, but the tests for the most common antibodies for autoimmune diseases were all negative, which is what made me think maybe it really is viral. Or maybe even bacterial….? She didn’t give us any lab results at my last appt, but they just finally came in the mail. For the first time, my Complement C3c is low (but C4 is fine) and “Bacteria” is 3x elevated. She didn’t mention either of those at the appt, so I have no idea what they mean.

After 8 months of this, I think I’ve accepted I’m on my own to get better here. It’s a relief to have this forum for support. I’m glad to hear you’ve found the forum helpful, and thank you, I hope I feel like myself again soon, too!

By the way, I like your handle. My husband and I are from Idaho originally – the potato state. We have a travel blog called “Two Small Potatoes.” Anything “tater” reminds us of home. <3

Sep 26, 2017 · What can cause ANA titre of 1:2560? in Autoimmune Diseases

Hi @peach414144, I guess I’ve been living under a rock but I had no idea turmeric is such a popular spice. I’m not sure I’ve ever even had it, or at least I couldn’t tell you what it tastes or looks like. We live in Germany, so sometimes it takes some serious hunting to find stuff, but we’ll enlist friends to help. Thanks!

Sep 26, 2017 · What can cause ANA titre of 1:2560? in Autoimmune Diseases

@johnbishop Ooo, so that’s where to find it. Thanks!

Wow, congratulations on 53 years! That’s incredible.

My husband and I celebrate 20 years next month. Well, 20 years of being together since we didn’t get married until 9 years ago. He always says that all our years together feel like five minutes…..underwater. SUCH a comedian. Your wife sounds like a hoot. A sense of humor is definitely one of the keys to a happy marriage.

I’ll let you know when I find turmeric. 🙂

Sep 25, 2017 · What can cause ANA titre of 1:2560? in Autoimmune Diseases

@johnbishop Haha, John! You really made me laugh! I know my husband could relate to “how high dear.” That’s probably a good sign though. I’m guessing you’ve been married for a long time? Not many other relationships are as challenging or as rewarding!

I forgot to ask you that, about how the turmeric tastes. Bummer to hear it’s not so good. I have an insanely good recipe too for “Power Puddin'”, which is just a mixture of chia seeds, matcha powder, and almond milk. Then I pile on lots of blueberries and nectarine. Maybe I could hide the taste of the turmeric in there.

Thanks for the link! I’ll check it out. Then I just have to find turmeric here in Germany…

Sep 25, 2017 · What can cause ANA titre of 1:2560? in Autoimmune Diseases

@johnbishop Hmmm, well I guess it makes sense that they don’t know what makes it come out of remission. Seems like there’s just so much that isn’t known about many of the ADs. So much more than 50 years ago, though, so that’s a plus. When I was telling a doctor recently about my grandma dying for kidney complications from lupus when she was just 39, he was pretty taken aback. Here’s to living in the age of modern medicine!

I just saw another post on here about turmeric for liver issues. Since I’m not actually sure what’s wrong, I’ve been hesitant to try supplements or medication for fear of making it worse. But I have a couple good links to read up about it and see if there are any contraindications for use. I really don’t have any active signs of inflammation, which I think is partially what’s confounding doctors, but if it can’t hurt, I’m willing to give it a try. Although I cut out coffee awhile ago since it hasn’t tasted “right” for months. So SAD! I’ve always been a coffee fiend.

I’m glad to hear you take your wife to appts. It was so hard for me to ask my husband at first – still is but it’s gotten easier. He’s doing a post doc so he pretty much lives at work. He’ll prioritize me any day over work if I just tell him what I need from him, but it’s so easy to fall into the classic “woman expects man to read her man and just do what she wants without having to say it” pattern. 🙂