Hi, I didn't see your post until now. I can't believe how many of your symptoms I've had, right down to the left-side numbness and tingling. So miserable. I'm really sorry you've experienced all this same crap.
I did consider Lyme disease back when I first got sick. I've been bitten by a handful of ticks since moving to Europe, and we live where Lyme is common. Despite that, none of the doctors here even suggested it as AA possible cause of my symptoms. I had to ask an internal specialist to test for it. The test was negative. Another doctor again tested for it, as well as several other tick-bourne disease, and all tests were negative.
At this point (nearly 3 years of being sick), I'm convinced it's a chronic bacterial infection. It's likely something infectious (my hunch and doctors' opinions), and I feel SO much better after antibiotics. Then the symptoms come back. Doctors here say it's absolutely impossible for a bacterial infection to cause elevated ANAs. Agh! So not true.
How were you, treated for Lyme? I assume you took antibiotics? I'd love to know how you're doing now, if you happen to see this post.