suzyp (@suzyp)

Rkaphact, I’m so sorry for what you are going thru. I swear that part of our illness comes from the frustration of not being believed or finding a good doctor willing to work till they find our problem. I have Hashi’s, CEB, fibromyalgia, and a fatty liver, diabetes, high BP, sleep apnea & metabolic disease and “non specific autoimmune disease .” I get a multitude of symptoms like you… Has anyone checked your adrenal gland function ? Some of your symptoms sure sound like an adrenal crash…it is a vicious cycle –weak adrenals cause problems , but having constant stress of illness cause weak adrenals . I’ll be praying for you !

Thank you …its great you could enjoy your trip ! There must be something to the endorphins …when i go on a trip I usually have more energy …enough to enjoy myself but then when i come home i crash . I am getting set up with a functional dr. My neurologist ordered did order an iron; ferritin and B 12 , the other day for my fatigue . I had a rough year with 3.surgeries on the same year so it could be part of the reason I’m having a bad flare right now. Best wishes to you as well !

I have been researching both Hash and CEB…:i have been dx with both high antibodies of each. They seem to go together…a dr told me one time that my low thyroid made me suseptable to a lot of other illnesses.

John, thank you for the info…the video was very touching ….I’m considering trying to get an appt. in Jacksonville.

Thank you Kanna…..i appreciate your
comments. I am sorry for the multiple posts –I’m having a little trouble navigating on this site yet. Say a prayer that I can find the right doctor. Susan

Hi cighanimo, I’m not the only one dealing with 30 years of the unknown. no dr has wanted to sort out my issues and it is so frustrating . I was dx with Hashimotos in 1984, and with CEBV in 1994. The one dr gave me a meds for the Hash’s inflamation and ther other did nothing for the CEBV My thyroid burnt out and I’ve been hypo ever since and have been on Levo for 30 yrs. I have a multitude of symptoms pain, fatigue, rashes, etc., off and on. But This is the worst I’ve ever been …with debilitating fatigue and ” liver pain.” I also have diabetes & high BP , so my pcp concentrates on those problems. . My hope is to find a doctor who will treat the EBV and Hashimotos …but I don’t have a clue who to go to.

Thank you ! I’m hoping to find a doctor who will try and sort out my problems.

Hi , all the natural doctors have wanted to do is fill me up with supplements..
what kind of a dr treats CEB ?