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Jul 10, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks everyone, My name is Eva btw!,, We are at the Mayo Clinic right now I am so impressed with this group of providers. Katherine, it is the correct spelling and I have researched. That is why I was asking. The problem is they DO NOT know what the bacteria is and cannot characterize the type of ILD based on biopsies and a surgery where they took a pieces of each lobe of the worst lung and studied it layer by layer. I feel hopeful with this new doc at least she listened. I will let you all know what the results are.

Jun 29, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Has anyone ever heard of my mycobacterium ventiflavum. The doctors at U of M Ann Arbor have tested my husband they find no disease. The only thing they found was a slow growing bacteria mycobacterium ventiflavum. There is no treatment he is just on oxygen and Cellcept .6liters resting 8 walking 10 excercising. They gave him the TB meds but he became very ill. I wonder if a second opinion at the Mayo Clinic would help.