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William

Posts (61)

Sep 15, 2018 · COPD/ Emphysema in Lung Health

Marc, I have asked that question at mayo Rochester… their repl was it is being worked on, not FDA approved so insurance won't cover..and is an expensive gamble.

Sep 2, 2018 · Linx procedure in Digestive Health

RFA, radio frequency ablation. They use radio frequency to burn off 3 microns of barretts skin, then you keep the acid off and the normal skin to grow back.

Sep 2, 2018 · Linx procedure in Digestive Health

Nanny,

I had a 4 in. Barretts segment, with high grade displaysia…. went through about 6 RFA treatments,

Aug 24, 2018 · Hx FAP, resection at 10. December 2017 GERDS 24/7. Meds not helping. in Digestive Health

Lisa, I am not a Dr, or medical professional, and the only experience I have had is a 3 mm hiatal hernia, 4 inch segement of Barrett's, multiple RFA treatments (the first was the worst… burning 3 microns of esophagus for 360 degrees over 4 inches… it wasn't the time to go to KFC for some extra crispy.
Most of this was done at UW Madison clinics, Last time I went to Mayo's Barrett's clinic…. a good move.

Aug 23, 2018 · Alpha-1 Antitrypsin Deficiency - just been diagnosed in Lung Health

Nancy,
If I am not wrong, you will pass to your children, an S or Z. All the more reason to have them checked.

Aug 21, 2018 · Alpha-1 Antitrypsin Deficiency - just been diagnosed in Lung Health

I was told my Dr Patel in Rochester, I probably would have gotten COPD even if I didm't smoke… perhaps later and less agressive. Test test test

Aug 18, 2018 · Alpha-1 Antitrypsin Deficiency - just been diagnosed in Lung Health

Sorry I overlooked that you moved to fl.

Aug 18, 2018 · Alpha-1 Antitrypsin Deficiency - just been diagnosed in Lung Health

Nancy,
I would add http://www.alpha1.org
They have ppl u can talk to that can add to ur info and resources.
In your test report it should mention ur GENOTYPE AND LEVEL…I am an MZ,carrier, and my level is 112. M is the normal gene and z is the problem one. What is ur stage of COPD, did you smoke and when did you quit… it is the first thing that MUST BE DONE, NO OPTION.
IF I may suggest a Dr to talk with at mayo rochester…. Dr Patel, wonderful person.
Also there is a mindful breathing lab at mayo…call and talk with Joanna Holt, see if she can get you into a clinical trial.