John, what are some of the over-the-counter supplements that you use? Are they readily available? I just joined the FB group. Thanks for that tip. Looks like it will be helpful.
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Wow, Your post is the first one I have seen that mirrors some of my symptoms. It’s difficult to explain these problems to anyone who has no clue what we’re talking about. I have to sleep under bedding that is not tucked in so I can stick my feet out. I have less pain when I am wearing socks. I need to wear slippers or shoes at all times for comfort or to prevent injuries (I stubbed and broke my little toe a few months ago). But I don’t like wearing shoes because after a while they make my feet burn and tingle with electricity. Learning which shoes to wear and when is always a concern. Your recliner statement was the kicker – I can’t have my feet hang off a chair; they must be in contact with something when I’m sitting. Otherwise the stinging and electricity set in.
When I am in the passenger seat in a car, I can’t keep my feet flat on the floor (too much pressure?); they have to stretch out in front of me and connect with the incline up front, and I have to move them around a lot. Thanks for confirming that perhaps my symptoms are real. What to do about them? That’s another story.
The concern I have is that evidently my neuropathy source is not known, according to neurological tests I have been given over the last 26 years. It is not peripheral but eminates from my lower back. I have constant electric zinging up and down my legs and feet with intermittent lightning bolt type jolts when I walk. At night the zinging is most prominent so it’s sometimes difficult to go to sleep. I have used gabapentin over the years but it really does not help. I tried Lyrica but it made me loopy and off balance. Surgery has been suggested with the caveat that there is no guarantee of any real relief. I feel like I will have to live with it but am just looking to see if anyone has come up with ideas of ways they use to calm the electricity down. I would appreciate any thoughts. Thank you.
My problem has not been diagnosed as such but I read an article that gave me pause. I have constant pressure and tingling, with sometimes pain, in the pudendal area, possibly related to a longstanding neuropathy radiating from my back. Am wondering what procedure I should follow. I haven’t found much literature on this subject. Any input would be appreciated. Thank you.