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Posts (10)

Mar 19, 2018 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

I feel for you! One thing you might try to keep in mind is that there is no one universal 'healthful eating' program. So now you are doing healthful eating for your colitus and it is still putting good nutritious food into your body to help you to be strong and healthy. I hope it will be under control soon so that you can begin your infusions again.

Dec 18, 2017 · Atypical Fibroxanthoma in Cancer

Thanks so much Colleen. You are such a good director. And, yes, the pathology report came back with clean margins and no additional treatment recommended. My surgeon’s Fellow explained why it took so long to get the report back. It seems AFX is mostly a cancer of exclusions. If it isn’t Melanoma, Sarcoma etc. and it has a stain that says it could be AFX, then it is AFX.

Dec 3, 2017 · Atypical Fibroxanthoma in Cancer

Thanks so much! It ended up that I had my surgery on Friday. The tumor has(d) a lot of spindly legs coming off of it so that MOHS would not work. I now have a 2+” incision (closed) on my right forearm and am waiting for the pathology report. As we all know, the waiting is the worst. The pain from surgery subsides but the agony of not-know doesn’t until one knows. Again, that you for your caring and thoughtfulness.

Nov 30, 2017 · Atypical Fibroxanthoma in Cancer

Colleen, Thanks for your reply. I am having my AFX surgery next week. And, of course, I hope I won’t need additional treatment. I’ll keep you posted.

Nov 22, 2017 · Atypical Fibroxanthoma in Cancer

I had surgery for lung cancer in July and now have been diagnosed with Atypical Fibroxanthoma. I’m wondering if others with lung cancer have also had this. Also, I’d like to hear from/about anyone who has had those even if they haven’t had lung cancer. Thanks

Nov 1, 2017 · My doctor did a lung cancer screening CT scan and found a mass - now what? in Chest Surgery

I too had a CT scan that identified a mass. The difference between us is that they (Mayo) had seen a nodule in my lung a year ago and I had had CTs done every 6 months so in fact the nodule changed. It was removed surgically (minimally invasive) and pathology showed it to be Stage 1 so I’m about to get my first follow-up CT. Good luck and do keep,us posted.

Oct 24, 2017 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Thanks, Colleen for checking up on me. My surgery was successful. The lung partially collapsed and I developed ‘rice krispie’ skin so I ended up being in the hospital 6 days instead of 2. And, I have some nerve damage. But, in the scheme of life that is very minor! I’m feeling well, just still short of stamina. I’ll have my first follow up CT in December, Mayo doctors, hospital staff all take great care of me.

Jul 4, 2017 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

THANK YOU!! You definitely provided me with the best upper I’ve had since my diagnosis. Your story needs to be told WIDELY – not just though Mayo Clinic Connect.