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18 minutes ago · Arikayce in combination with antibiotics for MAC treatment in MAC & Bronchiectasis

No, I haven't although I've read reports of other members. Not sure why pulmonologist has never prescribed for me. He strongly believes in Arikayce for me in that latest sputum sample (June) reflected return of MAC. So, now, at his recommendation, I'm back on the big 3 again.

3 days ago · Arikayce in combination with antibiotics for MAC treatment in MAC & Bronchiectasis

It's been two years since I was able to go off the Big 3, and I didn't have serious side effects, but I also remember Rifampin being most troublesome.

3 days ago · Arikayce in combination with antibiotics for MAC treatment in MAC & Bronchiectasis

I received and reviewed the journal but waiting on prior authorization by pulmonologist to complete prescription process. In the meantime, I will be starting the Big 3 cocktail again.

3 days ago · Arikayce in combination with antibiotics for MAC treatment in MAC & Bronchiectasis

Thank you, Irene. I am in contact with both my insurance company and doctor's office and will follow up with the assistance program you referenced. I am glad to hear that side effects have not been severe.

3 days ago · Arikayce in combination with antibiotics for MAC treatment in MAC & Bronchiectasis

I am being encouraged to use Arikayce, along with the Big 3 antibiotics, for treatment of recurrence of MAC. I had been off the antibiotics for two years. I am concerned about the "serious and common" side effects of Arikayce that I read about on the Arikayce site + this nebulized medicine is very expensive. Have received estimate from insurance company that even though it is covered in my plan, monthly cost to me would be around $450.

Jan 21, 2019 · Timing of medications for MAC in MAC & Bronchiectasis

In the year+ that I was on the big 3, I took all of them after breakfast.

Jan 7, 2019 · Big 3 and weight loss in MAC & Bronchiectasis

I was on the same for more than a year and also have Gerd. I lost no weight.

Jul 16, 2018 · Daily schedule for medications? in MAC & Bronchiectasis

I take the same meds, all three on MWF. I take azithromycin and ethambutol after breakfast and lunch and the rifampin two hours after the other meds.