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Posts (4)

Jun 15, 2017 · Sjogrens in Autoimmune Diseases

Yes my Rheumatologist is the one who diagnosed me and she just acts like its nothing and just try and control my dry mouth eyes and nose. She put me on methotrexate for my psoriatic arthritis and it has helped and has helped clear up my psoriasis. The wierd thing is that I am having all these liver and pancreous bile duct problems and none of my DR'S are putting 2+2 together but it seems from what im reading that my bile problems and pancreous problems could possibly be related to my sjogrens

Jun 15, 2017 · Sjogrens in Autoimmune Diseases

My nausia is so bad I take zofran once or twice a day depending on how bad my nausia is because I was throwing up 6 to 8 times a day if you read my post tho im also having liver and pancriatic bile duct problems thay I think are due to sjogrens syndrome so that may account for my throwing up not sure but yes I have a lot of nausia

Jun 15, 2017 · Sjogrens in Autoimmune Diseases

I forgot about the terrible brain fig I suffer from its no joke its seriously bad to the point that my mother in law comes by frquently during the day to make sure I have put the towels in the oven and turned it on or something. Sorry to have to post all of my problems but im in serious need of some guidence, help and just some compassion would even be nice.

Jun 15, 2017 · Sjogrens in Autoimmune Diseases

I have recently been diagnosed with sjogrens and knowing this I now know I have had it for many years yes I have the typical dry mouth dry eyes severe sinus problems I have tinnitus in my ears I dont know if thats related to sjogrens. The Dr. Who diagnosed my Sjogrens totally minimises my disorder to the dry mouth eyes and sinuses however I have been having problems with the bile ducts in my pancrous and liver I have had 3 sugeries in 5 months to put stynts in my bile ducts to help open then up its been 3 months sunce my last surgery and I think its time for another as my upper right side is in a lot of pain again and just last night on the sjogrens foundation websight I read about primary biliary colangitis and autoimmune pancreatitis that are symptoms of sjogrens and describe me to a T however my Gastro Dr just seems to think im crazy so much so that he perscribe trazadone for me telling me I was making up my pain yet he is the one who has had the stynts put in me he however states that my pancreas should not be in pain he doesnt know why im in pain hence the trazadone. I also in a year have lost almost all of my top teeth and will be getting my dentures next week and that will provide a host of new problems with my severe dry mouth yes I use all of the dry mouth meds yes they help yes I use drops for my eyes as they already have scarring due to the dryness and I use a sinus spray for my sinuses. I also lose sense of smell and taste at times I am severly tired all the time and just 2 years ago I was avery active person and 4 years ago when I lived in the mountains of NC I was a single mom who worked 2 jobs and also went hiking in my free time. I am recently on methatrexate for sjogrens and psoriatic arthritis and im on pain meds for a past back surgery and joint pain it helps some but of course makes the mouth even drier. My main problem is not knowing where to turn for this pancriatic and liver bile duct problems since my Dr’s like to dismiss my sjogrens disease. I think I see an appointment to the Mayo clinic in my future. If anyone has any sugestions my ears and eyes are wide open to anything at this point I have been almost bedridden fir a year and a half and I would love to have some form of my life back I just want to be abke to do small things like clean my house and go to the store once and a while. Oh my new problem is severe headaches anyone else have that problem?