Badges (2)

About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (16)

Oct 6, 2017 · Heart transplant in Transplants

@fatherscaregiver yes if he has been without therapy that long i agree he needs more then two sessions. You may want to see if he can get into outpatient therapy at a facility which to me was much more beneficial. Hoping the changes in his meds make a difference: ) with GI issues. I hope things get better for you both soon. Will they not let him go out if he wears a mask and during low volume times. Even if he could get out once a week i think that would help.
Unfortunately i am hospital righr now in severe rejection: ( hoping to get to go home today. Good luck with everything! Keep us posted

Oct 3, 2017 · Heart transplant in Transplants

@fatherscaregiver , Sorry for the late reply i have had alot of health issues going on plus live in Florida so had hurricane Irma. I had heart transplant in 2015. I can tell you the steroids definitely impacted me,try not to take it to heart. I would lash out at my mom who was my main caregiver after surgery we know its wrong but hard to control with steroids. Definitely need to have boundaries though that helps put us back in check 🙂
It should get better as steroid dose gets reduced.
I am surprised he has nit been doing theapy already, i started immediately. I had alot of GI issues if he is on Cellcept you may want to see if he can be switched to myfortic. Samr drug but one is long acting. It made a huge difference for me. Any questions feel free to contact me

Amy

Aug 2, 2017 · This and That and Talk - My Transplant in Transplants

@lcamino I am home now but completely wiped out. Hoping it is just from the massive doses of meds in hospital. We are hoping this did the trick but unfortunately my doctors are baffled at this point. Repeat biopsy next week will hopefully bring good news

Aug 2, 2017 · This and That and Talk - My Transplant in Transplants

@rosemarya thank you. I had went in for a repeat biopsy after my last one showed rejection and they treated it. I had to be hospitalized for another round of IV steroids plus 5 day treatment of atgam which completely wipes out your tcells. I am home now with another increase in my prednisone 🙁 . I am scheduled for another biopsy next week

Jul 30, 2017 · This and That and Talk - My Transplant in Transplants

My name is Amy. I had heart transplant 07/2015. Have been dealing with recurrent rejection since 04/ 2017 🙁

Jul 30, 2017 · This and That and Talk - My Transplant in Transplants

Sorry I have been mia. Was in hospital for over a week due to severe rejection. My body really took a beating from anti rejection meds this time. Hope everyone is doing well

Jun 16, 2017 · This and That and Talk - My Transplant in Transplants

@2011panc They did the same for me. Mine was changed due o the fact I was having horrible GI symptoms. Did they give a reason as to why they changed yours

Jun 16, 2017 · This and That and Talk - My Transplant in Transplants

@lcamino Ultimately we have to remember we can not question Gods plan. I definitely understand though I did the same thing after my dads death , he had alot of arrhythmia issues and he refused to get a defibrillator, I blamed myself at first for not pushing the issue with him. But my father went the way he wanted he laid down for a nap and never woke up. he lived life to the fullest that he could until the day he died and that makes me Happy!