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Posts (5)

Jun 20, 2017 · Almost a half-year wait for an appointment. in Digestive Health

5 months. From the posted date to September 19th. And I find myself wondering what the supposed utility and efficacy of the Mayo Clinic’s accolades and high-brow physicians are if you have to wait just under half a year for an initial appointment? Further, it’s not like it’s cheap.

Does anyone have suggestions for better places to go to, because this is a total joke.

Jun 10, 2017 · Intermittent fecal/sulfur breath odor in Digestive Health

Thank you for the Nitazoxanide link. It was helpful. And after perusing through the discussion pages, it’s all the same as the rest of the internet– plebs pooling their ignorance and buying into homeopathic methods that I’ve personally tried, and all amount to snake poison. I’ve already hit the point where hitting up the microbiology department at ASU for more answers has become a new hobby. There is nothing mechanically wrong with my body from the countless blood work and physical tests done, so I’ve narrowed this issue down to being a viral, bacterial, parasitic or fungal in nature.

I can go to the one in AZ if they have great GI physicians– or physicians who can coordinate information with thee Minnesota staff. Is that possible.

Anyway, thanks for your help. As frustrated as I am, I really appreciate it.

Jun 9, 2017 · Intermittent fecal/sulfur breath odor in Digestive Health

Yea, Most everything under the sun has been tried, including probiotics and enzymes (pancreatic too).

And that’s what I thought, regarding the nitazoxanide, but the parasite tests– so far– have come up negative. That and I had to properly motivate the doctor to take that seriously and test for them. This is the same doctor who wouldn’t take the parasite thing seriously after telling her I worked in a sewer as punishment for a couple weeks and that the water supply for the dorms frequently came out different colors at least once a month, and I, like an idiot drank from it on a semi regular basis. With a straight face, she asked me how I knew the water supply at my old base was contaminated if the base never sent us an informative letter. Apparently she has faith in the government being 100% honest with its armed forces and the public in general

Anyway, one more parasite test will be completed, fecal and blood work, some time next week, and then that’ll be crossed off the list. If so, I need one great specialist to take this up and start investigating. There are many others out there having the same problem and if someone could help dx and treat the issue for good, I guarantee they’d have a large group of people travelling from around the country to seek the same help.

Jun 8, 2017 · Intermittent fecal/sulfur breath odor in Digestive Health

After scouring the web, I’m certain I’m not the only person with this problem, and not the only person who’s been told they were imagining it. Anyway, the issue is I have intermittent odors when I talk (yes, I’ve been to the dentist 10+ times– all say my oral hygiene is on point and xrays and inspections showed nothing). The only time it’s practically non-existent is when I eat an unhealthily low-carb diet. Like others online, I’ve had CT scans, Barium swallows, endosocopy/colonoscopy, screening for parasites (getting one more from an IDS before crossing that off my list). All showed up negative. I tested positive for SIBO, but after researching that for the past 3 years, I’m certain SIBO is more of a symptom than a primary causal problem. Furthermore, even when I treated SIBO with heavy antibiotics, it did absolutely nothing for my breath– and yes I was cleared of SIBO after a couple rounds of work. yet, the moment I eat carbs, I still get a “did someone just s*it themselves?” comment.

I guess what I’m getting at is I’m tired of doctors just saying it’s IBS and SIBO and then proceeding to do zero investigating afterwards. I want to get down to the root cause of this, but most doctors are either too apathetic or too incompetent to do anything. Are there any researchers who specialize in studying and diagnosing hard to find problems in the GI tract? Between the 3 GI docs, 2 ENTs, 2 NDs and 1 IDS, I just can’t take normal doctors anymore. I want my life back and I want a specific root cause so I can work on progressing from there.

Further notes: Diarrhea actually cleared up when I ate junk food and I had zero bloating, albeit the odor remained.

Xifaxan and neomycin did nothing for the odor, nor did the elemental diet. I actually think the elemental diet made the smell as bad or
worse than before.

*******Nitazoxanide********** worked wonders for the month I was on it. Solid stools even with foods that normally cause my ibs to flare up.
It’s exactly the reason I felt there was more going on to everything than just SIBO and IBS.

Jun 8, 2017 · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

May I inquire as to which antibiotics you were prescribed and the dosage. I’ve been through 3 gastros. They all failed me and I want to know, beyond neomycin and xifaxan, what is possibly usable.