I had a colonic interposition about the same time you did and, like you, I spent a year and a half with a bag on my neck, unable to eat or drink. No fun, but on the plus side I’m here writing you. I’m glad to hear about someone with the same problem. The procedure is so rare that I’ve had little luck in finding anyone to share problems with. I also have pain after eating. It’s not located in any specific area of the abdomen; my whole abdomen is involved as a unit. The only thing that seems to work for me is an opiate – Percocet (Ocycodone + Tylenol). I take on average 3.3 per day, a dosage that has not changed for about 5 years. I don’t think the pain relief is the result of the analgesic effect but because it slows down intestinal activity. Narcotics frequently cause constipation, so in my case diarrhea may be a blessing. My case may give you leverage if you find that Percocet works as well for you as it does for me; physicians are averse to prescribing opiates unless there is evidence that it’s needed for your condition.
I have diarrhea almost all the time, but almost no problem with bowl control. Maybe the surgeon removed more of your lower bowel than mine did. That’s another problem with this procedure—every case is different. Symptomatic differences are hard to attribute to the similar surgeries. The psychological problems you encountered are much greater than mine, probably because the procedure had so many more averse physical consequences. Age is probably another important difference—I’m 75.
One recent problem that has come up for me is fluctuating glucose levels, especially unpredictable bouts of hypoglycemia. I’m labelled a borderline diabetic despite my 100 lb weight loss since the operation. That restricts my diet considerably. I have severe dental problems that have cost me over $25,000. I suspect that dentition related to the interposition might be caused by anomalous uptake of calcium. That’s important because I have tried and failed to get my medical insurance to pay for the dental work. They said I can’t clearly show that it’s the result of the operation. There is almost no literature on post-procedure symptoms so I can’t claim any correlation. Do you show any signs of increased dental problems following the operation? My condition is also associated with borderline osteoporosis.
I sure wish some doctor would take on the subject of post-surgical histories of people who have had colonic interpositions. I tried with my surgeons, but the lead doctor left for a better job elsewhere and the other doctor is not so motivated.
I wish I could be of more help to you. If you think of something I can do, please don’t hesitate to write or call.